Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • You're too kind lovely, although I am lucky to have him as he's been very brave over the last year. And talking of OH I'll have to disappear for a while, as the evening care routine approaches.

    Looking forward to chatting again hon xxx

  • Hi Mrs P, and another warm welcome from me, though I'm so sorry you find yourself here, and for your recent diagnosis, which everyone will tell you, is the most difficult time, my treatment stops all hormone production with resulting problems, which I've worked through my friend including poor sleep, have you asked about an alternative to Mirtazapine?, or a stand alone sleeping treatment.

    Eddie xx 

  • Thank you! Lovely to meet you too

    to be honest it’s all quite new. HRT was fab at regulating all my symptoms including the insomnia so giving Mirtazapine a go first, but if I can’t get on with it I’ll go down another route. I feel like I’m grieving a lot at the moment and my imagination is running wild. Just got two more scans and then I can get my head around the next steps… tiring in itself haa! Thank you again and hope you manage to rest x 

  • Your welcome my friend, it can be a little overwhelming in the beginning, but things do settle down somewhat, so please steer clear of Dr Google he isn't your friend; stick to CRUK, Macmillan or the NHS site for looking for answers, well it's almost my bedtime, I am 2 hours ahead of the UK, sampling the delights of Greece.

    Eddie xx 

  • Night night Eddie, and glad to hear you're having a great time - by sampling the delights I hope that means food and great views!

    Love to you and the girls and don't miss us too much xxx

  • Hi again sweetie, and it's great you've met Eddie as he's a star Star and also very conversant with meds and what they do, which I'm not.

    Anyway, I haven't been doing the care routine all this time, but playing a game I've devised that's great for my OH's wellbeing. No, not that! You see we understand the grieving process too, as the nature of his surgery took away his voice box, meaning he can't speak anymore, and a big part of what we had is gone. But we've managed to find ways round it and one is our game. He's always loved music and quizzes, so I play a song on my phone and he's got to write that and the band on his board, double quick before the title is sung. Points are awarded to decide the eventual winner. We're a bit crackers but it works, and better than wallowing in misery.

    I'm hoping you manage to get some sleep tonight hon xxx

  • Hi Gilly, the game is perfect my friend, and no, I wasn't thinking THATGrinning, but I was thinking back to over 40 years ago learning BSL with a friend, she had a brain tumour and was told it was almost certain she'd lose her voice when the tumour was removed, and I remember how much fun we had learning it together and was wondering if you and LOH had considered it? My friend after her surgery went back home to her family, so I never got to really use BSL again, so remember little of it 

    Anyway I'm only up because Mandys boys are wanting something to eat, so we're all having crumble and ice cream then it's back to bed for them, I'll join them when I know their asleep. 

    Night night and bosies xx

  • I think that's great Gill, well done to you.

    We're still here in Tucson until next Thursday (Thanksgiving) when we're back to the UK. Have been walking in the desert this morning (Saguaro National Park East) with the giant cacti then back to the house when intense thunderstorms started early afternoon. Very dramatic.

    Derek.

    Made in 1956. Tested to destruction.

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  • Morning Eddie. Yum, crumble and ice cream and I'm feeling hungry now, regardless of the hour.

    I'm glad you don't think our game's bonkers as I'm trying to keep LOH's mind in working order - I'd hate him to stagnate. I did think about trying to introduce Makaton, I think it's called, as a simple form of sign language. There's probably plenty of info on the internet, but thanks for the tip and I'll have a look.

    Well I'm going to get some sleep now, as I've got plans for some Christmas shopping when the shops open. I've got a deadline though, as our match kicks off at one. We'll probably lose yet again. Lol! Enjoy the feast with the lads and have a good sleep when you can. Big hugs xxx

  • Good night Gilly xx