Awake and up all night

  • 6800 replies
  • 314 subscribers
  • 459689 views

Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Is there a cancer support line or anyone to speak to beyond the Samaritans at this time? Xxx

  • I think many of us have those thoughts which are perhaps a mixture of intuition and concerns. I used to over-think such thoughts before the specialists had begun their work. Now, sometimes with difficulty, I keep it simple. I recognise that I feel ok and enjoy the moment. I avoid going in to the 'what ifs.'  My 'kids' are 40 (daughter) and 45 (son). My wife departed this life 18 years ago in a car accident, so I do not have the same decisions to make as yourself regarding how and when to tell family. Only you can make those judgements but it sounds to me that you have the right approach all round. Best wishes. 

  • Ray, I'm so sorry to learn how you lost your wife in tragic circumstances. It must have been traumatic and you have my sympathy my friend xx

    But I'll have to love you and leave you all as I've got a medical delivery supply coming as early as 8 o clock, plus tiredness has caught up after a tiring few days. I can't answer Kim's question about support lines through the night but maybe others can. I'll look in tomorrow, all being well, and sending love to you all xxx

  • Thank you Gill. Sweet dreams!

  • Hi Kim, I'm only aware of The Royal Marsden having a 24/7 helpline, Macmillan's is 8am to 8pm and is very helpful.

    Eddie xx 

  • Kim, I did a quick search to see if other cancer support lines were available in the UK after midnight. It looks as though the Samaritans, the Shout Crisis text line and the NHS 111 service (urgent but not 999) is about it, apart from Eddie's suggestion - unless your hospital has something similar.  There is also a cancer forum with Cancer Research but I do not know how active it is at this time of night. I hope you can find something suitable. Can any of us help?

  • Hi Ray, I'm on CRUK's forum, and it's very quiet at night, but they have some wonderful people on there, the moderators are lovely but it's also 8am to 7pm weekdays and I believe 9am to 6pm at the weekend 

    Eddie xx 

  • I'm off to bed now. My daughter is visiting tomorrow. It would not do to still be soundly asleep at midday!!  Once I'm asleep, I can easily sleep for 10 hours, only awakened by a full catheter bag and the resulting discomfort. I don't think they are available with a warning alarm. Pity Laughing.  Good night. 

  • have you tried any of the stevia plant sweetening products,

    Yes, I was OK with Stevia but Alan didn't like it.

    H

  • I'm sorry you've had to join our club. I hope you got some sleep before your scan today. Hopefully the scan is precautionary.

    H