Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • 'Ey up Steve.

    That was a good idea, starting a topic on nothing specific. I've got an awful habit of going off at a tangent and I know it must be seriously annoying when I do Disappointed 

    My mate sent a message this morning and said she was running around like a headless chicken. It's a true statement as when we were in Austria, my uncle Fritz (yes, really) was slaughtering chickens and like the young ghoul I was, I was busy watching him. He'd just chopped off a poor unfortunate's head when it flew off the table and came straight at me. I ran but it chased me, so I bolted through a door covered in wire mesh. The poor thing changed direction and flung itself against the mesh, splattering me with its blood. Everyone thought it was hilarious but I never watched him butchering again.

    I've just read up on it, and it explains why the phenomenon is fairly common. Useless piece of info for the day xxx

  • Hi Steve,

    It's funny you mentioned that about keeping a diary during our cancer battles, I've done the same thing. I rarely go back and read mine, but when I have I feel the same way and just shocked at my thoughts back then. It was a place for me to rage, vent my frustrations, go over the "why me" and "what if" questions over and over again. Throughout my cancer journey, I try to keep my brave face for my family and friends, even though that isn't possible at times. Being able to write it down definitely has helped me a lot.

    You also mentioned having more empathy now, and that's something I've also experienced. Other than my aunt, no one in our family had an history of cancer, and now everything has opened my eyes so much. Meeting so many people of all ages with different types of cancer changes you, and in my case made me mature faster than my friends when my battle started. It's crazy going back and reading a diary, or just going through memories of life before cancer, and where you're at now. leaves me speechless at times. 

    ~Stacy

  • Hi Stacy Wave 

    Great post, and your experience certainly seems to have given you a mature outlook on things most take for granted. I honestly wish it hadn't happened to you though, and you could have carried on being blithely unaware my lovely.

    How are you today sweetheart? As well as you can be, hopefully. We're going through a bit of a rough patch just now, but upbeat remains the order of the day. I sometimes wish there was a pill that would render me speechless, as I find it hard to keep a lid on it! Hugs to you hon xxx

  • Morning Stevie,that's not right my friend, I  was fine with dentists till about 8 years ago when I developed a bad reaction to anaesthetics, just as my dentists of 22 years was retiring, I'm private, but if I needed any treatment requiring anaesthetic they'd send me to Sheffield hospitals dental department, anyway I  still have a baby tooth, goes with my babyish good looks, which I decided I wanted out, by this time, as my anaesthetic issue worsened, even a filling scared of the assortment of replacement "dentists," put before me, so I was sent to Sheffield, who gave my teeth the most thorough cleaning possible along with 4 Xrays, and told I needed a very small filling 1st, they don't do fillings, so I tootled back to my dentist the following day, explained things and bugger me they took more Xrays and cleaned my teeth again, no filling and went to charge me, I told them what to do and haven't been able to get with a dentist since, I'm on 16 waiting lists.

    Eddie xx 

  • Stevie, I'm sure losing all your testosterone plays a big part in us guys with PCa becoming more empathetic, though I've been that way a long time, and I believe that's in big part due to most of my family and friends being female, and of course having kids and grandkids who I wish them to be kind and caring. 

    Eddie xx 

  • Hello Eddie ( 

    , I'm sure losing all your testosterone plays a big part in us guys with PCa becoming more empathetic,

    Mrs Millibob says just that about me too. It appears I am calmer and happy to help others. I also don't worry over many things.

    Another advantage about being on Hormone Therapy and having no testosterone is you don't sweat!!  (I won't mention the moobs or the ED!! Angry!!).

    Kind regards - Brian.

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  • Well Brian, they say every cloud has a silver lining, or two with PCa, the empathy is wonderful, and leaving behind everything that's not important, as is all the wonderful people you meet,

    Ahh the moobs, but I  do sweat and never had a problem with ED, though other side effects did their best to put a stop to things, but I must thank you for an information link you gave to a guy on the PCa forum, which turned out to be very helpful, thanks pal.

    Eddie xx 

  • Hi Gill! 

    Thanks for the kind words, I truly wish none of us were a part of cancer club, but life just has other plans for all of us warriors! I'm sorry to hear about everything you're going through, but huge congrats on getting over 6 hours of sleep last night! I can't remember when I slept that much uninterrupted, I just toss and turn at night and can't ever get comfortable. I find myself wide awake lost in my thoughts staring off into the darkness of night, or watching TikTok videos at all hours of the night and morning.

    I'm doing okay today, we went out for groceries this morning, and I've just been chilling at home since we got back. I've been thinking about the surgery more and more now that we're in November, so that keeps me in a bit of a funk.

    I truly hope your new sleeping pattern continues! Slight smile

    ~Stacy

  • Hi again Stacy Grin 

    Aw sorry you're having a time trying to get some decent sleep, but with the surgery decision on your mind it's not surprising my lovely.

    I think my sleeping pattern has developed into narcolepsy! Just kidding but I've slept half the afternoon away, and busy playing catch-up now. We've got some sparklers ready to light up in the garden, but I'll be careful as LOH mustn't get any smoke into his lungs. Caution observed at all times. Have you got bonfire plans, or saying indoors to remain warm and cosy?

    Whatever your plans, have a good night and here's a hug xxx

  • Hello everyone. Hope you are all well? 
    A warm welcome to the new members of the forum. 
    I have had a mixed couple of days, as my hair has started to come out, which has been a shock when it happens. 
    I have been to get a wig today, which is positive. It is really nice, and it suits me. 

    Enjoy your night. 
    Kez xx