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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Gill, Eddie, if you read my diaries you would see that I know how to swear!!
From the day I was diagnosed, over 4 years ago I have vented my anger in my diaries. Getting things off my chest has been good for me! But reading them back now I am thinking "Did I really write that??"
They bring back all of the emotions of the time, but I can look at things from a different perspective, as if I'm not there, looking down on myself! Strange!!
Steve (SteveCam)
It's similar to ORN, in that bisphosphonates can also disrupt oxygen supply to the bone, but can interfere with important enzymes especially FPPS, and GTP proteins which naturally rebuild bone tissue, and as your jawbone has the highest turnover of rebuilding of any bone in the body, it's very important there's no, or not likely to be any damage to the jaw through treatment, EG dental work, which can add to the risk, so it's important to have any dental issues treated before treatment, yeh the RT got me too, spinal stenosis amongst some soft tissue damage. Hi Sheas M918ed9 my teeth are good, so don't expect to need much dental but I haven't seen a dentist in 7-8 years so can't be certain and anyway Zolendronic acid is a very good treatment with a 90%+ success rate in healing/strengthening bone, and more importantly slowing the progression of cancer. I have no issues going on Zolendronic acid my friend
Eddie
Eddie, trying to get a dentist now is very hard. I, like many other people got removed from my dentist in COVID, as they wouldn't see anyone. Then after 2 years remove you from their books.
It took from COVID until April this year to get a new dentist! Then I see him once, and he stops seeing NHS patients! Crazy!
I hope you get sorted sooner rather than later.
Steve (SteveCam)
Morning, my friend, I read your post on the LWIC forum, and can so relate, I've been through PALS a few times, written a letter of complaint and have gone privately for a second opinion twice, so now, after over 3 1/2 years from diagnosis things are going much better, I saw your also signed up with your hospice too, their fab; but we can't self refer here. Oooh the co-morbidities, it does stump them, thankfully my cardiologist, who is wonderful has gone the extra mile for me in working alongside oncology, PS my 2nd opinions cost less than £200 for 45 mins, and have you thought about contacting the head of your trust or your MP?, Anyway a very warm welcome to our friendly little thread, I've got the kids to get ready for school, then appointment's.
Eddie xx
Morning Steve.
That's one of the best things you can do, to write things down at times of stress. Getting it out of your system is cathartic and reading back said diaries makes you reflect how angry you were, being dealt such a cruel blow. If you're anything like me, the stress manifests into a coping mechanism, changing your personality for the better. I'll bet you're far more empathetic to others now and can remain positive, even when fear's gripping your every waking thought.
Being volatile is one of my worst faults and that won't go, but I can stay calm now in front of most folk... but still swear like flip!
Have you any plans for today Steve? xxx
Morning Eddie and good luck with your appointments today
All I can say is wow! You certainly know your stuff and it's like having our very own instant consultant. You've missed your vocation, but I guess cancer played a large part in that. Big bosies xxx
Gill, I know after going through Prostate Cancer and everything that goes with it, my empathy levels are sky high!!!
B.C. - Before cancer, I can't remember having any empathy at all, but now, especially when I am in a 'good place' I have so much understanding, it's hard to describe.
Nothing really planned for today. Have you got anything planned?
Say hi to your OH from me. Hope he's doing well. Same with you!
Steve (SteveCam)
It's very true Steve, it does change you. I used to be so hard but now I start roaring at all sorts! We both go through far more tissues than BC
Nothing much on the cards today, but I'm going shopping soon and chores when I get home. I've just said Hi from you and he's sent a big thumbs up back.
Hey, I reckon I'll have to hand my night owl badge in as I'm certainly not up all night now. Another 6+ hours last night, and the alarm was responsible for bringing me round! Hugs to you and Copper xxx
They should change the name of the thread to 'Awake and up all day'.
I started a good one on the 'Prostate Forum' called "No Specific Topic" as I could never keep to the thread topics, and kept being put on the 'naughty step', allegedly of course!
Steve (SteveCam)
but still swear like flip!
I know quite a few expletives
then appointment's.
Good luck Eddie
H
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