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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
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Why is it that the doctors/oncologists don't seem to want to be proactive and give me anything or any advice on how to stop this angiosarcoma coming back? I've recently read that propranolol can be effective against angiosarcoma and after querying it with the team I'm just told it's "not routinely given"... anyone else find this? Really frustrating
I'm not in Donny my friend, but enjoying some "real," sunshine at the Scilly Isles with family and friends, Steve, did you think of meeting up with WW or Gina, while visiting your little brother, I bet that sounds amazing, are you still smiling.
Hugs to you both Eddie xx
Hi Big Stevie
I think in your position I’d be asking your doctors for the reason-more than saying it’s not routinely given, they should be able to say why not so you can understand their decision. I can understand it’s frustrating for you if you don’t know what their thinking is.
I’m on propranolol myself, but for a different reason, so I only know about its use in my own situation which is not angiosarcoma. My own experience with my team is that everyone has made the best plan for me at different stages of the process-in my case my cancer recurrence couldn’t have been prevented so it was a case of dealing with it when that happened,
Sarah xx
Hi Kez
Im glad the chemo went smoothly for you and hope that’s the case as your cycles continue. Have a good weekend!
Sarah xx
Tbh I've just gone ahead and ordered it from my GP.
Are you not having any cancer treatment at the moment? If you are then I’d think you would need to let your oncologist know you are planning to take a medication that they haven’t prescribed.
My propranolol is prescribed by my gp, and the dosage is monitored carefully as there is a risk of low blood pressure if I take too much.
Sarah xx
I just finished all my treatments today, had 12 weeks of paclitaxel followed by 6 weeks of radiotherapy
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