Awake and up all night

Hi Gilly, so glad you've both had a good day, so you've decided on an i-pad, what about an app? Well my friend the cockney accent isn't too bad, I can think of many worse ones, PS my harem say I've got a very calming voice, if you get stuck, talking of which; my friends, all ladies, are taking me to Bath, their too tight to take me to France , lucky Helen, yes Annette love's her Christmas markets, I'm hoping things go well and they manage a break, they so deserve, Awww, you want a Yorkshire accent, that will likely rule me out, as the Donny one is uque, just like .

Eddie xx

Aw that's lovely Jann, and you sound very proud too. My eldest grandson is autistic and pretty much mute, but he's an absolute smasher. 

Another Welsh connection, as you know our friend Debs lives in Wales now. It sounds like you've lived in a fair few places but I haven't. I only live two miles from the place where I was born, a farmhouse built in the 1600s. And it was haunted - whoooo. Maybe that's why I get myself off to sleep by listening to ghost stories. Told you I was weird,  xxx

Wide awake, yet again seemsxmy new norm. Hubbys having 5 x10 min radiotherapys this week, today was his 2nd & was in bed by 8pm as he was falling asleep on the sofa. Hes hoping to find out Thurs when he can restart his chemo, as delayed due a colitis flarebup from failed immnotherapy which ended in Aug, hes one & chemo was on Sept 25th & he felt fine, 10 days later out the blue this colitis started & Marsden urgent care looked after himnas an out patient for 4 days & hes been on prednislone, now weaning off gone from 60mgs to 50mgs & starts 40mgs on Thursdsy. But hes been absolutely brilliant feeling well eating well going out every day, doing gentle exercise, mobility back as all the fluid in his legs ankles & feet literally went 5 days after chemo, along with knee pain. So we knew this week would be hard with fatigue, even though just short bursts of radiotherapy, we were exoecting fatigue.

Its my birthday tomorrow & he wants to take me out forca meal, treatments at 1.40pm & have hospital transport booked. Personally I cant see it happening, unless he is feeling up to it, I'm not bothered, hes more bothered about it than me, though itbis nice getting out of the flat. So we'll see what happens. 

Just wish I could sleep as just lying in bed, I cant put tv on in case I wake him. Things just go around on loop in your mind, why him, but why anyone. Worked so many.years all these countries we wanted to visit. Onco said no to any overseas travel until the radiotherapy as finished, the sigmoidoscopy is done to check bowel on 27th & chemo as restarted.

But hes been his old.self for 2 weeks even looks like he used to.

But the worry still there delay in treatment is anything bad going on in his body, again my mind doing its loop thing!  We have been planning our first trip to see our friends who we miss, they live in Fuerteventura, planning to fly business class, a lovely hotel we know. Just need the ok from oncologist.

I dont know, tonight & today have been weepy, dont know why just one of those days....whether its because we had normal back & now started radiotherapy....

1. Apologies for my long post, I find it does help to off load....

Hi there Tillyboo, and it's great to hear your hubby is picking up after the traumatic time he's had. Don't worry about long posts hon, just getting it off your chest will help. 

Hey, I know you don't want to wake hubby but you need your sleep too. Have you got earbuds for your phone, as you could listen to soothing music to get you off? It's worth a try my lovely xxx

Listen - your message had so many points - But the one I picked up - your husband wanted to go out for birthday -that to me was just a big hug & cuddle for trying 

Don't loop your brain - that's easier said than done off load your brain any time you want - we all think are brains are scrambled we go through things like this -

Please just trust the staff Doctors and you said Marsden Surrey -my sister had breast cancer & has never said anything  just about how brilliant there were

Mike and I have between us had 3 years between us with cancer & me 2 strokes

we came out to Spain 2 years ago - do you know why - my husband said "if I can do I will" & we did

It is natural to beat yourself up - but I just hope this Forum helps you like me

Never say sorry for long posting - if it helps just do it

All of  us are here for you & love you xxxxxxx

Hi thanks for reply. I did have them, but cant find them. I'll have order another set. I've obvs put them somewhere safe, which seems to be a new habit!! 

That's wonderful news about the hack being sorted, and even better news you can pop on whenever you want and be one of the guys. We've heard about Bristol's multicultural Christmas market, which sounds fab, and we love  Bath and Salisbury. I stopped updating my profile as my situation is very unique and has little relevance to anyone else, but I'm doing ok my friend, enjoying another holiday. Well I see we're talking about my favourite subject, family, I have 3 girls and a boy 36yo to 53yo, and 12 grandkids 16yo down to twin girls coming up to 6 months old, and we can talk about other things tomorrow my friend.

love Eddie xx 

The Donny accent is certainly out on its own Eddie. I used to work with a lass who came from Doncaster and she'd pronounce Coca-Cola as kerca-kerla, for an example. I always imagine you speaking with a Scottish accent but only because I know you're from Oban, and forget you've lived south of the border for years.

So you're off to Bath with your harem? Well let them pamper you and enjoy as it's a beautiful place, although I've only seen it on the telly. The Crescent looks spectacular, as does the other scenery. Is there anywhere left to visit in the UK my well travelled friend? Which of course is a wonderful thing to do, but I'm sure you've not done Wales yet - the invite from Debs must be tempting? Hugs xxx

night night x

Thank you. My hubby also hadca stroke in 2018 which left him with a right weakness. He eas totally paralyzed on the right side butbwe fault together with physios to get him mobile again. He beat tha& I hope & pray he beats this Once onco says its good to go, we're & going in style! Were planning a couple of places to visit, as we know the island & our friends have a car. We just need this goal to focus on, which I'm sure we'll make. Altho hes stage 4 lung with mets, he as no symptoms cough breathless etc the radiotherapy this week is on the iliac bone in the hip. Althogh not excruiating, onco said she'll refer. So no need for cocodamol or oramorph. Though tonite, no oramorph. It was a late treatment 2.50pm so didnt get until just after 4.30pm. Had dinner & started dozing about 7pm & at 8pm I just go to bed, if you sleep though thats good & if u eake up I'll av a cuppa with u....so far hs sleeping, which is good, gives the body healing time....

I'll probably want to sleep when its time to get up!!