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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
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Hi LauraJane, and another warm welcome from me to our friendly little family, I can't add much to what the guys have already said my friend, due to having a different cancer and unable to have surgery, but my eldest daughter and her mum both went through major surgery in the past year for cancer, both operations getting towards 10 hours, not an experience I hope to repeat, but the results have been amazing, and despite poor prognosees, their both doing wonderfully well. As I pray will be your experience as well, best wishes my friend.
Eddie xx
Hi LauraJane7e34b2 and let me also welcome you to our community.
This is a great place to find new friends to chat to, and hopefully share your worries with, so I hope you’ll get a lot from being part of it.
I’m going to put my Community Champion hat on for a moment and give you a link to another group on the forum which will also be helpful for you, and that’s the Head and Neck Cancer group. This is the link
You’ll find people in that group who have experience of similar cancers and who have been through treatment and surgeries who will be able to help with advice and support. Why don’t you join that group too, and put up a new post to introduce yourself there?
You can be part of as many groups in the community that you want to be a part of, and it will give you more places to get advice and support.
Having a major surgery is a scary thing-I’ve been through a few over the years but got through everything so far. My partner was waiting all day for me to come out from my biggest surgery and it was harder for them waiting and worrying than it was for me being asleep!
Before I went for it, I was thinking about how I would have to go through pain, the body changes etc but that it was temporary pain for long term gain. The statistics didn’t like me-I just had a 30% of surviving, but that was more than 5 and a half years ago and here I am and considered cured.
Focus on the good things afterwards, not the process to get there, and always keep that hope!
Sarah xx
Morning Sarah.
I was going to suggest Head and Neck forum to LauraJane last night, but knew you'd come to the rescue and do it properly, so thanks for that lass.
Well we've got a Doc's appointment this morning so I'd better crack on, but I'm hoping you're still on a high from your recent victory. I think you should treat yourself to something nice as you deserve it. Call it an early Christmas present
Have a lovely day xxx
Good Morning Sarah,
Thank you so much for your lovely, encouraging reply. I'm so pleased to hear that you're now considered cured. That's incredible. And you're absolutely right, I need to look at the other side. I've got through the last three years. One more hurdle. My daughter is so excited about the idea of us being able to eat the same food again. Such a little thing- big to her. I need to visualise all that food I'll finally be able to chew.
Also, thank you for recommending the head and neck cancer forum. I've already joined up this morning on your advice.
I wish I'd found this place three years ago. Thank you again for replying. Already feeling less alone!
Laura
Morning Gill
No problem-I hope Laura will find it helpful and of course you’ll be on hand to welcome her to the group too!
I treated myself to 4 new walking sticks and 2 of those litter grabber things as I can’t bend down to pick up stuff. I will have one litter grabber downstairs and one upstairs and have the sticks in different rooms-I’ve already got 3 sticks (remember I lost one in that fight with the recliner!) as I keep forgetting where I’ve left them! Now I should have one to grab where ever I am.
Hope everything is well at the docs this morning-at least it’s not raining here today so I hope it’s dry with you for going out. See you later.
Sarah xx
Hi Laura
You’re very welcome, lovely. Being able to enjoy food again with your daughter is a huge deal-enjoying food is such a huge part of our lives and it will be fabulous to enjoy this again together after your surgery.
I didn’t have the support of this forum when I was first diagnosed in 2018 and it felt very lonely but I’ve been here for nearly 5 years now and made a lot of lovely friends so it’s a big part of my life now. Better late than never!
Sarah xx
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