Awake and up all night

Hi everyone I can’t sleep I am to falling asleep then awakening up can’t go back to sleep I got diagnosed about two weeks ago I had a ultrasound and biopsy that how they know what it is and I saw the breast surgeon specialist but they done bloods and I had these scan I was ment to have  and they booked me a appointment to see two weeks time so tell me what treatments but I got a phone call saying that they want to bring the appointment from and what’s to see me today late afternoon I am so scared this normal for them to bring forward appointments was just wondering if anyone eles had this 

Hi Leek; and a warm welcome to the forum, though I'm so sorry you find yourself here and for your diagnosis, and how it's affecting you emotionally, at this most difficult time, and its not surprising you can't sleep.                                                           I have had, during my 3 1/2 years with cancer, a few appointments brought forward, though usually their put back, so you having your appointment brought forward isn't the norm but it happens, and I would be guessing to tell you why yours has my friend, but I can say whatever the reason, starting treatment as early as possible is a good thing so you can start fighting back against this awful disease.       I will have everything crossed for the best news possible at your meeting today; my friend.                                                                    Eddie xx

Good morning Leek, and a warm welcome from me too xx

So sorry you're going through all this anxiety, but as Eddie says, it's better to get the appointment brought forward, then you'll know what to expect today rather than another two weeks of worrying. I've got everything crossed for you that once you're appointment's over you'll be in a better place, and hopefully able to relax a little better too. Best foot forward my lovely and your new friends here will be thinking of you this afternoon. Sending you hugs and strength xxx

Good morning Eddie, and I'm hoping you've been getting plenty of rest and relaxation xx

I'm delighted to report your tip with the neb worked a treat! I warmed the tube from the compressor for a couple of minutes and hey presto - tangles gone and no more weird noises! For some reason LOH was tickled pink and laughed (silently) when I was telling him about how I'd achieved it. I finally figured that discussing kinks and tubes with you was the reason. Lol! Well no matter, as he doesn't laugh much these days so a bigger thank you for inadvertently inspiring that reaction my friend xx

Hoping Jean and Joyce are loving their stay with you all and looking forward to the Scillys. I've finally got the PIP form, so I'll be heading to the library in a bit to photocopy all the relevant paperwork and then get cracking with the form. Love and hugs to you all from us xxx

Morning Gilly, I've had a busy ish time since getting home, but with enjoyable things, mostly.

And it's a pleasure to help you both in some little way, though I've no idea what tickled LOHs goat talking about tubes & kinks, I guess your naughty mind has rubbed off on him, it's great to know he still has a laugh, in his own way, which I can imagine makes your day my friend.

Oooh the dreaded PIP form, I'm on it, and I bet you're wondering how with all my hols, let's just say I don't talk about everything. Anyway Gilly answer every question describing LOHs worst experience of it, and if you can, get a note from your consultant backing it up,"mine read the gentleman has maybe xx time and struggles to walk 20 meters," which at the time was my situation, but the note made a big difference to my application, "this was my second time," the first time it took 5 months to get refused, the 2nd time it was accepted in 5 days, and backdated to my 1st's application date, J&Js recent exploits have caught up with them, so it's a relaxing few hours on Cleggy beach, in the sun , then resting up at home, as Sheila's son and DiL are coming round, and they've never met, but I know they'll get on great.

Good luck with the form, and have your,  glass half empty," head on.

love Eddie and family xx 

Hi again Eddie, and I'm certain everyone will love J and J as they sound like a fun pair. Is there a sun out today cos it's not reared its head here?

Anyway, still plowing through all the relevant correspondence to send, and as I've already been given appointee status by the DWP I'll be putting forward a strong case on his behalf. All research done before I put pen to paper, and I'm astute enough to know what to write down . I insisted on a home visit, which we got very recently, but now the palaver of the form that won't deter me either. I'm glad you eventually got sorted Eddie, but these obstacles shouldn't be put in front of genuine cases. LOH is disabled and will probably never drive again, which makes me sad for him. I'll try and top the empty glass up, but yes, his laughter cheered me up too, and I enjoy telling him about my chats on the forum and showing him all the photos. Have a super day and love to you and yours xxx

Gill, I've just had my PIP review forms.  My stress levels hit the roof!  Managed to get a local disability charity to help me with the forms.

I'd put a claim in when I was still working, just before my Cancer diagnosis.  It ended up going to a tribunal, in the middle of Covid, over the phone... I got a massive pile of paperwork from the judge.  It nearly finished me off!

I ended up 'losing it' with the judge as they were saying that I couldn't mention my Cancer, as by the time the tribunal was, nearly 2 years after the original claim.  I'd just finished my Radiotherapy and wasn't in any state at all.

It put me off applying again but in 2023 I put in another claim, and had a MacMillan support worker help me with the forms. 

I received the care part.

My mobility now has really deteriorated so 'touchwood' I might get the mobility after the review. 

I've been told it'll be about a year before my review is dealt with.

If you can get help with someone who knows how to fill the forms in.  It all depends on the language you use on the forms.  Knowing what to say, when!

It's a minefield!

I'm sure you will be successful for your husband.  Give him my best.

"Up the Leeds" 

Aw thanks for that Steve, but I'm sorry you've had such a rough time with it all. It's really not fair but never stop fighting for what you're entitled to, and fingers crossed you get the lot.

I'm a truculent sod so they've not deterred me yet, and I'm the proverbial dog with a bone when things get awkward. I've got my own way with them so far so I'll see what transpires once they've got the form and enclosures. If they ask for further documentation I'll get it.

Well done on recent results, and I hear the Bacon Sisters threw a party after the Forest game! Howay the lads! Try keeping those stress levels down and concentrate on looking after yourself. I do all the worrying, and the paperwork, for both of us here as I'm better equipped to deal with hassle than my poor lad is right now. I'll pass on your good wishes and I'll send you a hug xxx

Gill, I didn't get the reference to the Bacon sisters at first!  But I soon cottoned on!

I know when I eat certain things, I'm a bit of a 'Johnnyfartpants'.   In my diaries I call it 'Roy Castle doing a Trumpet solo in my pants!'

I even have reference to 'Gladys Knight and the Pips' but I won't go into that now, in case you are eating.

I can imagine you being a 'force to be reckoned with ' in the nicest way of course!!

Hi Leek

Sorry to hear of your diagnosis and worries. 

I would imagine it is a shock to be called in on the day unexpectedly but I would view it as "getting on with it". Good luck this afternoon, there's usually someone around here if you need to vent.

H