Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • That's the way to do it Brian!

    Made in 1956. Tested to destruction.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Brian, he could have been to see Mrs Robinson.

    Steve (SteveCam)

  • I used to have a memory bank.  Think mine's TSB, but I don't have any memory of it . 

    Steve (SteveCam)

  • Gill if I ever get on Mastermind, my specialist subject would be 'useless information'.

    "I've started so I'll finish".  Hmm...

    Steve (SteveCam)

  • Or...if you ever get on Who Wants to be a Millionaire, I could be your phone a friend if useless information crops up.  We've cracked it Steve!

  • Not sleeping well. Waiting for diagnosis, biopsy. Why is everything taking so long? Want to start and get rid of the cancer. How to tell my kids. Haven't told them anything what's going on. My youngest son has just phoned worrying about his friend's mum diagnosed with cancer and metastasis to brain. Can't say anything to him over the phone. He's too far away and not fair to him. Don't want my 3 kids to worry until I know what's going on. House looks terrible,  can't concentrate on anything. Was doing 3 jobs and now limited because of bone pain. Am sure everyone goes through something like this so rant over!

  • Evening Salgo and welcome to the thread, although I'm really sorry to hear about your problems.

    Many would agree with you; the waiting can be worse than the diagnosis but don't worry about having a rant, as this is a good place for that and you'll never encounter recriminations.

    I reckon you've done the right thing, not saying anything yet until you know for certain what's going on.  Forget the house too, it's not important right now and will still be there for such a time you feel more up to have a quick tidy round.

    Have you been prescribed pain relief?  Please do take it if you have.  I'm going to have to leave here for a little while, as I've got care duties to give to my OH.  But please stay around Salgo, as others might be around to chat with you.  And I'll be back soon if you're finding sleep isn't happening.  Try not to worry my friend - the unknown is the worst part but hopefully you'll be in the know soon.

    Sending you strength and a big hug xxx

  • Hi again Salgo.  I'm back again if you want to offload, and you might feel a little better just getting it out of your system for a while.

    My OH's only been out of hospital for two days and is still feeling rough, but I've got him settled now, hopefully for a good night's sleep. xxx 

  • Hello Salgo, and a warm welcome from me, to our little family, and this is the hardest part of your cancer journey my friend, going through tests and waiting for results and treatment to start, and having little idea about everything that is happening is an awful place to find yourself; so what you are feeling is perfectly normal, so if you want to scream, shout, rant, or have a good cry, then do so.

    When and if to tell the kids is a deeply personal one for you to decide, as you know your kids better than anyone else. I had to tell mine as they would have found out anyway, and they've been wonderful with it, and generally kids are far more resilient than we think they are and astute when realising something isn't quite right.

    And please use your medical team, their there to help and support you, so tell them about your pain, poor sleep, anxiety, poor concentration, and concerns, it's so important you look after yourself my friend, I  know it's difficult, but try to find a little time most days to do something that allows you to switch off for a moment.

    Eddie xx 

  • Evening Eddie.  Sound advice from a seasoned trooper.

    I'm really hoping Salgo is managing to get some rest, or sleep, and will be able to switch off for a time.  It's a tough call though, as worrying keeps the mind active and we all know about that, unfortunately.

    Love to you and Sheila xxx