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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Have you tried emailing the secretaries address either on hospital letters or the hospital website on line ? I’ve had far more success with emails than phone calls.A couple of times the consultant has phoned or emailed back.Apologies if this has been suggested already.Jane x
They seem to operate on phone numbers only, although I have an email address for the main consultant's secretary this is apparently for appointments only. No email addresses for the regional hospital oncology that did the chemo.
I am a little phone phobic, so this is frustrating.
I’m phone phobic too.I have to work up to phoning anyone I don’t know so I do empathise.It’s not easy if you find phoning hard.That is not good if you can only email to make appointments.I usually mention that I find phoning tricky and the secretaries have been helpful so far.
One of many points I will raise if I am asked for feedback at the end of all this. I am surprised at the lack of email facility, as the nurses are usually too busy to answer the phone but an email can be replied to when convenient. Plus, it's a record of the communication.
Hi everyone. I made it home!! My neutrophils were high enough to go home. Glad to be home but ended up vomitting at 2am last night.
Hospital didn't have any anti-sickness meds on my discharge but I insisted on something so they gave me the meds I was topping up with. Clearly not enough! Phoned hospital this morning and I can take the original one again (I have some at home). They'll review on Monday.
Hope the sickness goes soon. It's horrible!!
Hope everyone is ok xxx
I have had some weird moments recently where I could have sworn I was talking to someone in person but this was impossible as I hadn't left the house. Also, when I am upstairs in the office, I sometimes think someone I know is downstairs. Or the dogs, which have been away for 6 months.
I remember after my mother's dog died, she thought she caught glimpses of the dog in the house. Maybe this is similar.
BTW I can't see what your second emoticon is, it's too small ...
Yippee! Home already so well done Julie, and I'm amazed how quickly you got there! Excellent news hon.
Has your daughter moved back in yet, and was everything in apple pie order with the red carpet rolled out? Or, a quick sidle round the back to avoid nose job neighbours? We've got some of those.
Aw it's great you're back on home soil hon, so take it extra easy and be pampered. You deserve it!
Having any pangs for your hospital room at all? What's that i hear? The distant yell of "am I £#$%!!" Thought so.
Take care sweetheart, and hopefully the nausea will pass soon. Gentle hugs
and lots of love
️ xxx
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