Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Have you tried emailing the secretaries address either on hospital letters or the hospital website on line ? I’ve had far more success with emails than phone calls.A couple of times the consultant has phoned or emailed back.Apologies if this has been suggested already.Jane x

  • Former Member
    Former Member in reply to winkers60

    They seem to operate on phone numbers only, although I have an email address for the main consultant's secretary this is apparently for appointments only. No email addresses for the regional hospital oncology that did the chemo.

    I am a little phone phobic, so this is frustrating.

  • I’m phone phobic too.I have to work up to phoning anyone I don’t know so I do empathise.It’s not easy if you find phoning hard.That is not good if you can only email to make appointments.I usually mention that I find phoning tricky and the secretaries have been helpful so far.

  • Former Member
    Former Member in reply to winkers60

    One of many points I will raise if I am asked for feedback at the end of all this. I am surprised at the lack of email facility, as the nurses are usually too busy to answer the phone but an email can be replied to when convenient. Plus, it's a record of the communication.

  • Hi everyone. I made it home!! My neutrophils were high enough to go home. Glad to be home but ended up vomitting at 2am last night.

    Hospital didn't have any anti-sickness meds on my discharge but I insisted on something so they gave me the meds I was topping up with. Clearly not enough! Phoned hospital this morning and I can take the original one again (I have some at home). They'll review on Monday. 

    Hope the sickness goes soon. It's horrible!! Nauseated face

    Hope everyone is ok xxx

  • Former Member
    Former Member in reply to ShimmeringUnicorn

    I have had some weird moments recently where I could have sworn I was talking to someone in person but this was impossible as I hadn't left the house. Also, when I am upstairs in the office, I sometimes think someone I know is downstairs. Or the dogs, which have been away for 6 months.

    I remember after my mother's dog died, she thought she caught glimpses of the dog in the house. Maybe this is similar.

    BTW I can't see what your second emoticon is, it's too small ... Thinking

  • Yippee! Home already so well done Julie, and I'm amazed how quickly you got there! Excellent news hon. Hugging

    Has your daughter moved back in yet, and was everything in apple pie order with the red carpet rolled out? Or, a quick sidle round the back to avoid nose job neighbours? We've got some of those. 

    Aw it's great you're back on home soil hon, so take it extra easy and be pampered. You deserve it! 

    Having any pangs for your hospital room at all? What's that i hear? The distant yell of "am I £#$%!!" Thought so.

    Take care sweetheart, and hopefully the nausea will pass soon. Pray Gentle hugs Hugging and lots of love Heart️ xxx

  • Former Member
    Former Member in reply to Julie2468

    Nothing worse than sickness ... I hope you feel better very soon. xxx

  • Thanks Gill. Absolutely, not missing that room!! Family looking after me well.  Glad to be home xx

  • Hope the sickness goes soon. It's horrible

    Glad you're home but sorry you've been sick, I hope it passes soon. 

    H