Awake and up all night

Has anyone tried to delete a post and found that it worked?

Hello Mariab

You only need to join the womb cancer group if you wish to start a new thread - you can still read posts and reply to them.

If as you say you "subscribe" you will be able to start your own threads and have a link on your home page to take you there -and it's all for free - no catches.

Here's the link you need to take you there:

Womb (uterus) cancer forum 

If you need any help in navigating the Community please do get back to me.

Best wishes - Brian.

Afternoon all

I can't possibly catch up with all the posts I've missed so I'll say hello to any new members.

We had friends round for lunch yesterday, a simple bolognese, and we had a few drinkies. Let's just say I was a little tipsy .

H

Good afternoon. Hope you are feeling a bit better today. All the unanswered questions you have are normal. Its all scarey. Ask your team explain how your feeling. Why have you got to travel so far from home for treatment. Originally they wanted me to travel about 35 minutes from home i explain i have travel anxiety and then all treatment was thankfully carried out in velindre hospital. 

I have completed all my treatment now, 4th august but my head still whirling with things. 

I kept asking what stage my cancer was and no one could tell me until after my operation and samples had been examined by histology. Hope that helps a little bit. 

Taje care xx

I have to travel a long way because there are only 8 hospitals in the country dealing with cancer, some are specialist units and 4 of those 8 are in the same city, with the main radiology service. In my case, there are only two hospitals in the country that have the right skills and I live an equal distance from them. There is no public transport to one of them and it would be a long and difficult drive. My nearest regional hospital, with an A&E, is a 45-minute drive away. No public transport so I drive there when I have to get bloods done. If you don't live in one of the few cities, there are few facilities for anything and poor or no public transport. So it takes me 3 hours actual travelling (plus waiting for connections) to get to the hospital in the big city in overall charge of my case plus surgery and radiography, and an hour and a half each way driving to the regional hospital (not the nearest) for chemo as this is the nearest one that does it.

As for talking to my team, I have various phone numbers but if it's not the emergency line they don't answer the phone.

Living alone with no relatives in the country or friends in the area, makes this doubly hard.

Sorry for my tardy response . Thank you for your get well wishes. Feeling rough but nose not quite the torrent it was  

Thanks

Hello folks. Just caught up with the chat. Not feeling great but thankfully not worse  

 Gill H You feeling a little revived? What do you need stocking up on?

  I think it is extra flummoxing to find yourself trying to knit soup when you are accustomed to being able to assess a situation and find a timely and achievable way through it. 

It does seem unfair that at the very times when our personal resources are under siege, we are thrown boulders and someone turns the lights off.

Is there anything you feel would make your treatment locations more doable?

Would someone else driving you be better or worse? Etc

There may a dearth of official support but there may be alternatives.  For example, we have a charity that my craft group supports, Daft As A Brush, which provides transport for cancer appointments. Not a panacea as it is only to specific hospitals. 

It can be hard winkling out hidden gems while you are trying to get on with being unwell!  

Cheers

Hello folks. Just caught up with the chat. Not feeling great but thankfully not worse  

 Gill H You feeling a little revived? What do you need stocking up on?

  I think it is extra flummoxing to find yourself trying to knit soup when you are accustomed to being able to assess a situation and find a timely and achievable way through it. 

It does seem unfair that at the very times when our personal resources are under siege, we are thrown boulders and someone turns the lights off.

Is there anything you feel would make your treatment locations more doable?

Would someone else driving you be better or worse? Etc

There may a dearth of official support but there may be alternatives.  For example, we have a charity that my craft group supports, Daft As A Brush, which provides transport for cancer appointments. Not a panacea as it is only to specific hospitals. 

It can be hard winkling out hidden gems while you are trying to get on with being unwell!  

Cheers

Hello! Sorry you are still unwell, what with this weather as well it's hard to stay cheerful.

Regarding transport, the hospital staff expect patients to have relatives or friends to ferry them to appointments and treatment. When I said I didn't have either, they simply didn't know what to do. For chemo  as I qualify on distance from the hospital (plus there is no public transport for that route), I get picked up by an Irish Cancer Society volunteer, who collects me again when I let them know I am ready to leave. It's an exellent, free service but it is limited to my region (Irish Midlands, covering specific hospitals). There is no such service to Dublin, where my case is based, although if I can get to the station I can get a train to Dublin although there are not many through the day and I can't get to Dublin before lunchtime as I am limited to off peak. I get free travel so that's a bonus. Connections once in the city are quick and regular. If I am fit to travel alone that's okay, but I'm not sure that will be the case. I had surgery 17 years ago but it was relatively local so my neighbour dropped me off and collected me a week later. I can't expect them to do the same for central Dublin, it's too far and too difficult.

The main problem is the 5 consecutive weeks for radiography. The hospital has a former nurses home to accommodate patients but it's way out of the city with poor connections. I absolutely cannot leave my house empty for that long, nor can I tolerate communal living among strangers (remember I have autism). I am 'allowed' home weekends, but getting to the railwsy station may mean a long taxi ride -not affordable.

I am going to make some phone calls on Tuesday, and call in to my GP to see what help might be available. I think the 5-week marathon won't be until January, depending on the extent of surgery, still an unknown factor.

So good you got it twice!

  Just a thought, have you contacted MABS just to see if there is anything else you can do money wise in your specific situation? I see there is a little wiggle room for social benefits whilst earning where there is reduced capacity.

Of course you may smash any limits there are in terms of income despite your fixed and worrying expenses.

Cheers