Are you having trouble sleeping?
Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7.
“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Concern is generated if redness stays for a few days or if I develop symptoms like pain or fever or go very pale. In 2017 and 2018 I could stay alive and walking after 6 weeks of continuous blood loss but needed transfusions to sustain activity after that. I can usually sense when to get to A&E. Bedtime now. Nighty night. xxx
Hi Sonia,
Yes, it's all through infusions. I had a picc line put in when I first arrived. It's in my arm, with a thin tube in my vein, going across my chest.
I had chemo through it yesterday that wipes out my bone marrow, then today and tomorrow I get my stem cells back through the picc line.
Most of my immunity is wiped out and slowly comes back over time (getting vaccinations again in time). I can go home after my neutrophils reach a certain amount but it takes up to 2 years to reach full immunity and to not be immuno-compromised anymore (as I understand). Of course, relatively normal life returns before that, with care (my daughter bought me a ticket for Harry Styles at the end of next August and I'm going!!)
I'm doing ok so far. Having lots of blood tests because of my previous reaction to cyclophosphamide - my sodium levels are ok so far but today would be when I had a nap that lasted 3 days so will be happy to get through today ok!!
Not too bored yet, thanks! Got knitting, crocheting, puzzles, reading etc to keep me busy. WiFi is rubbish but OH upgraded our phones for this month so have unlimited data. Mainly. I've been listening to Amazon Audible - it's lovely to be read to!
Sleeping is challenging as it's like Blackpool Illuminations in here but of course can nap a bit in the day, in-between visits from various doctors and nurses. OH coming in-between working (his work have been very good) - first thing and evening. A month is too long to take off but he's doing some online teaching so reduce face to face contact with students (he's a Uni lecturer). We're both in the wrong jobs for having a problem with immunity!!
Hope you're getting on well xxx
Hi Shims! I'm here! Just wrote a long reply to Sonia about life here. Actually, nurse just turned out the corridor light so it's dark now. Hopefully, will get back to sleep.
Hope you are your lot are well xxx
I lost my hair to chemo 12 years ago, it came back black (from fair) then gradually returned to normal. Two years ago I lost it to chemo again (a different cancer) and it came back exactly the same as it was before.
So perhaps pot luck but whatever happens I hope you like it.

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Ok ssshhhh Will they leave you alone overnight? I remember my mother being on15 minute observations which took about 5 mins each time. She was very poorly but a doctor looking in before breakfast said ' Get her up as she's slept enough!' Hadn't had time to close her eyes.
Hopefully you will so nyt and good luck for tomorrow
Currently due to site shenanigans it's difficult to know if a newly published post is newly submitted ie the poster is present. If you are I am just in time to say hi and nyt as I should try for a snooze.
Hope you are ok, take care
Yes, I'm here. However, a bit of a cheat because I'm in the south west USA at the moment where the time difference is 8 hours behind the UK.
I am actually normally awake most of the night at home but can't get on here to chat because I don't want to disturb sleep for my wife. I usually just lay there in bed listening to LBC 24 hour news on earphones until I nod off - usually around 2 to 3 am for about 2 hours each night.
Hope you're now snoozing.
Derek.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hello Ray, you have certainly gone through a lot, and it sounds like the nurses over there are just as wonderful as they are here. This year has been the most medical intervention I have had in my life so I didn't know what to expect. I was surprised to discover that flowers are banned so there went plan A, and I only thought of sweets and fancy shortbread yesterday. Plenty of choice as shops have stocked up for halloween trick or treaters. I have hidden it in my backpack as I have to go through tests today before they let the treatment go ahead, always a worry as I suffered a 3-week delay in May when I picked up a severe infection. So there is no guarantee until around 9.30 today that this will be my last time. After that, the whole circus moves to Dublin. (Chemo is at Tullamore, one of the regional hospitals 'only' and hour and a quarter away.)
Gill xx
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