Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Has anyone else stayed grey or does their old colour come back. 

    My hair was silver before chemo but it's come back blonde, which I haven't been for many years Rofl

    H 

  • Especially with some chemo curls

    Mine came back straight.

    H

  • No im same as you never learnt how to drive.

    I don't drive either.

    H

  • Former Member
    Former Member in reply to Julie2468

    Wow, a stem cell transplant sounds really scary! I wish you all the luck in the world!

    You sound very positive about returning hair colour and the prospect of curls! xx 

  • Evening Julie forgive me for being useless but how do they do the stem cell transplant. Is it by injection? Hope you are doing well in there and not too bored.xx

  • Evening all 

    We left M&D for a few hours and went to Albert Dock in Liverpool for a walk round. We went into a restaurant for a coffee and had a meze board to share

    It was delicious, especially the hummus.

    I may have mentioned that Dad has trouble eating now but tonight I did cottage pie with cauliflower & broccoli followed by bread & butter pudding (ready made from Tesco) and he polished the lot off without so much as a splutter. It's a shame we can't give him that every night. 

    H 

  • That sounds lovely Helen. Glad your dad is eating well. You have just reminded me I love bread and butter pudding. Will put it on my next tesco order. Best wishes to you and your family.xxx

  • sssshhh most will be asleep or trying to sleep. Got kicked out of the site barely a minute in but noticed my MIA post had arrived  Have caught up with chat. Fuuu!

    Cheers

  • Awe  @GillH   it's disheartening to discover our engine isn't quite what it was! I was always fabulous at last minute stuff or doing stuff at the last minute and always had the 'extra' time that I didn't use for sleep... then fibromyalgia hit ... whadaymean 35 mins to get out the door?!!! That used to be enough time to shower, dress, make and eat breakfast, collect stuff for the day, pack a bag, have a cuppa etc etc

    Ooh I also feel really bad at wittering on about all the stuff at the end of the street. Our hospital sits with entrances on both of the major roads into city, both full of shops etc minutes away and the city centre in walking distance.

    Ok I will shut up... although city centre has less and less.

    Cheers

  • Hello Gill across the water, there have been a few strong gusts here today in the UK Midlands but only the odd spec of rain. I was looking at my garden fence at the weekend because one of the posts had taken on a jaunty angle. I thought the post had rotted at the base as it has been there for 20 years but it had just wobbled its post hole a few sizes too large. I may be able to drive an angle iron stake into the ground then screw it to the post, a method I successfully used a few years ago on the other stretch of fence.

    It was a lovely gesture of yours, taking a card and edible goodies in to your nursing team. I wanted to do that back in 2018 when I was discharged from hospital after about 6 weeks in three unequal sittings. Unfortunately, I had so little energy when back home that I did not get round to doing it. When some fitness crept back, I had trouble remembering names and even wards as there had been so many, so I was again thwarted. I'll try to make the effort to do something, perhaps by asking a nurse for suggestions, given the time and memory lapse. I recall a contract nurse who was absolutely wonderful when I was in a side ward, one who gave me an Easter egg when in another side ward, another named Jackie who was initially very officious but soon won me over after she shed a tear when she and my daughter pushed me into the operating theatre wing not knowing whether I would emerge again, another called Page who stuck with me when I was filling with clots blocking my system but carried on with the gruesome task until I was functioning again for an hour or so. Also a registrar who had an East European (?) name which required an extra long badge - he was superb. The trouble is that I've been on a palliative, symptom driven treatment regime since then and now get recognised by nurses in Same Day Emergency Care....I'll need a dozen cards and a van load of biscuits Grinning.  Ray xx