Awake and up all night

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Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • The family dinner sounds fab, and many hands make light work, so the saying goes.  I'll bet you're a dab hand at baking, and I'm sure Annette was referring to yourself, visiting her with scones a few weeks back?

    The lady you spoke about is lucky to have found yourself and your caring friends, albeit a desperate situation for the poor lass. As long as she's got support and kindness, that's something she'll be grateful for, I'm sure of that.  It's still sad to read about though xx

    The football - we got thrashed so not too happy but we did expect to lose. I swore, a lot, but I'm over the disappointment as I'm not rabid about it like I used to be. There's more important things to dwell on these days, obviously.

    Anyway, Leeds till I die - MOT - ALAW. Gives chest thump. I doubt others on here are Leeds fans but some might know what I'm on about.

    Love from us both to you and yours xxx

  • Aw Twirly, poor love.  If you've got pain meds, I hope they kick in soon. Have you been home for long and have you got someone to help you? I'm my fella's carer so know quite a lot now how to care for a laryngectomee (neck stoma) as there's no-one else to do everything he requires at home. No need to reply if you don't feel comfortable with it, I just want you to feel ok.

    Hugs my lovely xxx

  • I’m a month post op, the pain is mostly from my ileostomy stoma, seeing my surgeon on the 3rd of September about my reversal. 

  • Hi Twirty, and a warm welcome from me,  I hope you don't mind but I read some of your posts on your other forums, and saw all what you've been through, wow, and indeed still going through, do you have a specialist nurse you can contact about the pains, are they new or worse than they have been and are you allowed to manage your own pain control. I'm sorry my friend for all the questions,  and I  do hope your boss isn't being so pushy, and you get your stoma reversal soon. There's always someone here to talk too at all hours, though I  sincerely hope it's not nessessary.

    Eddie x

  • Fingers crossed you get the outcome you want Twirly. Not too long to wait now xxx

  • Oooh I couldn't possibly comment on meeting Annette, but I do make nice scones, though my eldest daughter is the magician when it comes to baking, and recently boxing for the  families honour, and the grandkids love to help preparing dinner and it's a wonderful educatiilon for them.

    I did ask our new friend to consider joining the community, so maybe you and the guys may hear from her one day,  but I think for.now having 3 friends who understand what she's going through has given her a little lift and a little comfort.

    Losing 5-0 isn't good, let's hope  it's a lesson learnt and quickly, marching on together all Leeds aren't we, not really me anymore, but always better  Our guys than those over the Pennines.

    love Eddie and Sheila xx 

  • Haha.  You got it Eddie. Yay! The wars of the roses still goes on and I doubt it'll stop any time soon.

    I know your eldest lass gave the wedding creep a belt, (nice one) and I still think you're Mr Scone.

    If your new lady ever decides to join the community, she'd be made very welcome indeed.

    Love Matron Gilly xxx

  • I really hope so, thank you. 
    They did say the operation went exactly to plan. 

  • Well that's really good to hear and I hope the reversal goes ahead. It'll certainly make life easier for you eventually, losing the stoma. I don't know about stomach ones, which I assume you've got, but my OH's neck stoma was a bit tricky in the early days - now I just have to keep it all clean and regularly clean the mucous from his lary tubes, etc. before putting them back in. He lost a fair bit of dexterity, that's why I do the honours.

    Hugs xxx

  • I'm a little disappointed with my eldest daughter punching that idiot when she did, and me missing it by 10 minutes lol, I shouldn't condone violence, but he got off lightly, and I'm not interested in your conjecture re scone guy, and I know my new friend would benefit from joining the community, she does like to talk, but small steps, we're having a meet-up on Monday, when I can show her around a few of my forums, I'm always happy to recommend the community to everyone, even those from the wrong side of the pennines.

    love Eddie and Sheila xx