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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Well finally good evening folks! Was catching up with all the chat. Wow! So much and then of course I got dumped out of the site and had to do the hokey kokey to get back in with access to all areas rather than a spectator!
Ooh some serious stuff with some very worried folk but of course excellent advice and warm welcomes.
Can I ask our new people if they have a named person as their main contact? It can be difficult when so many different medics and technicians become involved to feel that anyone is actually seeing 'us' ... that is, the person rather than their specialism or procedure.
It would be helpful to talk about how you are feeling rather than just your next steps or current bit of treatment.
Seeking information, lots of information, is understandable. The internet however, doesn't have a caretaker to throw out poor information or to relabel opinion that was presented as fact.
We know this about other stuff online. Some of it is questionable, some misleading, some wrong and some dangerous.
Here at Macmillan, there is a caretaker. There are experts who have ensured that information under their name in their many leaflets and online resources is reliable and up to date. And if your are still tempted to think there may be something being missed, the huge numbers of people on our forums are ensuring that isn't happening.
You have stepped into a wonderful world of people who are wrangling this and winning.
Welcome ... and end of lecture
Evening Jeffrey
Site glitches made me miss your earlier post, but just to say we've all got your back hon.
Like Uki, I'm not the patient but my OH's carer. He was stage 4 larynx cancer with radical, life changing surgery as a result. I scared myself crazy in the early days consulting Dr Google and really thought it was curtains for OH.
He's still here and coming up to 2 years post-op. Everything in our lives has changed but we dug in and march forward. We've all got an inner strength we didn't know was there till cancer hit.
Just use reputable sites and leave Google for recipes and other mundane stuff. And come here for just about anything as you're part of the group now.
Sending hugs and so sorry to hear about your brothers. You're right though, the chances of getting cancer are rising xxx
And now seagulls. You know there aren't any? They are gulls. You identify the different types by the colour of their legs etc.
Inland? They love a landfill refuse site.
Anyway their precision ing was mentioned. Spot on. Err literally
On a visit to Whitby a pal two steps ahead of me nodded her head forward for a nanosecond and a sharp shooter managed to score between her collar and neck! 10 out of 10
A previous partner of mine, took the day off work and ... acting as though I wasn't around (don't ask!) got out a sun lounger, positioned it out in the sunshine, went indoors then reappeared in shorts, carrying a tall, narrow, glass flute of strawberry wine. Odd thing for a morning in a backyard!
He settled down with a smug expression ... beautifully wiped off his face when way up high in the clear blue sky, a gull let rip ... Olympic shooting teams need their help as this bird miraculously hit the wine... not the glass just the wine within it!
My happy mood was back in spades
Cheers
Ey up Shims
You too with the glitches? Aye yi yiii.
Anyway hon, I told my mate Eddie that Ray was wondering about how he was and how he liked his holiday snaps, so just a minute and I'll send a beauty from one of Eddie's trips to the Scilly isles.
And...
Jeffrey, it's fine lovey. You'll be surprised what folk get used to in time although I'm certainly not belittling others, that's just me. OH is still coming to terms with it but counselling is on the horizon, so we wait.
Like others here have said, this group is a lifeline and it's therapeutic to be able to open up about anything without judgement. I do it often and always feel much better afterwards.
Are you feeling sleepy yet hon, because my eyes feel like they're full of grit! xxx
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