Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Goodnight Gilly and Chloe xx

  • Morning all-I’m back!

    Sorry I had to disappear for a bit-I have ptsd and unfortunately it was triggered by a picture someone put up in the thread of an X-ray so I had to keep away for a bit until the chat moved on so I didn’t see it again. It means I can’t go back and catch up with posts unfortunately, but once I see certain pictures, I can’t unsee them, so I can’t take the chance of seeing it again as anything to do with scans or x rays affects me quite badly and every time I shut my eyes I see the picture again. 

    Anyway, hope everyone’s doing ok. I was at my gp last week for my own x ray results (didn’t ask to look at the images!) and he had good news and bad…which I didn’t like the sound of! Anyway, the osteoarthritis in both knees isn’t too bad, but it’s bad in my lower spine and left hip and very bad in the right hip. It’s actually completely gone now. Upped my pain relief and referral sent to orthopaedics. 

    My appointment actually came through on my app last night which is amazingly quick and only a month or so to wait to see the surgeon so that was fast! I’m not looking forward to more surgery, but a life where I can walk again would be incredible so I’m going to have to pull up my big girl pants and get on with it. 

    Looks like we’re in for some lovely weather so I’m always happy to be warm and see the sun, even though I can’t get out in it! Have a good day everyone.

    Sarah xx


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  • VAR has just been brought in wrong, with still too many human errors as a result of using it… I saw a good clip with vinny jones… in regards to using VAR with the offside rule that said… not a elbow a knee or a toe but there has to be a visual gap between bodies to be deemed offside and I liked that idea.. I hate the fact the ref has to go over to the monitor… they definitely could learn a lot from other sports such as  rugby and cricket.. 

    Hope the appointment goes well and I hope you have the best meal out 

  • I was determined I wasn’t having anymore cannulas in my poor veins lol… the nurses kept saying how strong and brave I am but to me they were the heroes not giving up and finding a way… 

    I wondered if any of you knew how I could nominate a team or individual for an award?  

    I have a ‘complaint’ I need to put together for when I finish treatment not to complain as such but more for future improvement so hopefully it prevents anyone else having the experience I have had.. but equally it has highlighted the amazing work I also feels needs recognition. 

    How are you doing Eddie? Thank you for the banana tip too x

  • got lymphoedema clinic in the morning but going for our dinner straight after

    Good luck with the appointment and enjoy your dinner.

    I was awake for over 2 hours during the early hours but managed to nod off again for a while. I've just had a cuppa and will have another soon.

    The neuropathy in my toes is still bothering me, some times it's quite bad.  I'm 3 months past my last chemo.  Did anyone else have this side effect and if so how long did it last? 

  • 5 attempts it’s taken in total but the picc line is in!

    Wow, well done you.

  • Hi Sarah, it's lovely to  see you posting again my friend, but I'm sorry to hear you  have PTSD, I have a couple of friends with the condition and have a little idea of how much it can take over your life at times, and so sorry your osteoarthritis is so bad, but it's wonderful you have appointments reasonably quickly and surgery to follow, the chance of being able to walk much easier afterwards, is what I would be focusing on, that would be wonderful for you my friend. Are you being treated at DRI, Annette asked me to tell you she received your PM, but is having issues getting on the forum, and would never ignore you, she's had some wonderful family news, but ill leave it for Annette to tell you. I have osteoarthritis and chronic osteoporosis, pelvis, sacrum, lower spine, and both shoulders my last DEXA showed over 40 microfractures, I'm trying, at present, to get treatment changed to one that might work lol, and I'm with you regarding warm  sunny weather, it's fab.

    love Eddie and Sheila xx 

  • Hi there, my husband had neuropathy quite bad about 6 weeks post completion of treatment. He cut down his sugar intake as he read somewhere it can be caused not only by the treatment but also early onset diabetes. He slso bought some insoles for his shoes. Link below. His neuropathy iz much better now, he just has slight numbing of his toes.

  • Hi Eddie-yes, my appointment with the surgeon is at DRI. I haven’t been there since an appointment for something else last October but I suppose it’s too much to hope the parking is any better! I’m sorry to see you have a lot of similar issues-it has such a huge impact for me anyway on my quality of life, but here’s hoping this chap will sort me out! It could be a whole new world not being in a wheelchair! 

    You must tell Annette not to worry-I know there is a problem with the messaging system right now, but hopefully not too long before the team get it resolved. I’ll look forward to hearing her good news! 

    Everything seems much better when the sun is shining, but I can’t quite see it yet here!

    Sarah xx


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    Cervical Cancer Forum

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  • Thinks Chloe xx

    I'm in full agreement with your post - unfortunately they deem an eyelash offside if a player/team is out of favour.

    Anyway, if you've got treatment today, I hope it won't be too gruelling but you've got guts and are doing brilliantly so far.

    Love to you and yours and a cuddle for your little doggies xxx