Awake and up all night

Hiya Eddie xxx

Hi Trev, and a warm welcome from me,  that place you mention is familiar to many of us, I've been on my journey over 3 years and I still visit that place occasionally, but for less time, and feeling fearful especially in the early days is normal, the tears will never be far away , but you learn to live with your new reality, please don't deny your emotions we have them for a reason, and a good cry is so good for you.

Eddie xx 

Hi again hon.  Don't reply as I want you to rest.

Yep, I worry about Sian too and wish she'd come on here to talk to us.  Patrick replied to your post but I thought you might be asleep so I spoke to him, as he's getting himself worked up.  Talk to him in the morning Debs, as he's become reliant on you.

Fingers crossed the PMs return soon.

Night hon, sleep tight xxx

Hi Trev123 A warm welcome! My husband had chemo a few months ago and although he tried to bury his head in the sand and pretend it wasn’t happening to HIM. I think he felt better when I reminded him that my type of cancer doesn’t respond to either chemo or radiotherapy, so he should be thankful they have offered it to him! To be honest, I think he was afraid of the unknown but it is amazing when treatment works! The CT scan once the chemo finished wasn’t clear enough to see if they got it or not, so he has had to wait another 6 weeks to have another CT which is the week after next.

I think having cancer is like being on a roller coaster with its ups and downs, you don’t know when it is going to move fast or slow but I think if it is still moving, you are at least in with a chance!

It is strange how you can be in a room full of people and still feel lonely and alone! I am guessing you have not long had your diagnosis, as your Profile page is not yet filled in but take heart things will get better!

Hi Helen (Sbird), What sort of Cross Stitch do you do? Those two words take me right back to when I was diagnosed! At the time we had 1 granddaughter of just under 2 years old and I decided I wanted to do a Cross Stitch picture, frame it, so it could be hung in her room and it would be a way of remembering me by talking about the picture. As I love the seaside, that is what I decided to do. Then our dil told us she was pregnant and it was a boy, so I started another CS. I was so terrified that I’d not finish it before I died, I sat up nights doing it! Then what? Our daughter was pregnant with her second child. I thought thank goodness a Seaside Picture would be fine for either sex, so I bought the last pack in the set and again worked night shift until it was finished. Our 3 grandchildren ( 2 girls, 1 boy) are now 10, 11 & 13 years old and they love their pictures!

The Trial Drug I was on for over 3 years worked its magic and I’m still here to tell the tale. I’ve recently taken up crochet, it is much quicker!!! Do you crochet? I will attempt to put 1 of my CS here but don’t know if it will work! Time will tell!

Evening Annette.  A brilliant post to Trev and absolutely sums it all up.  Hubby and myself have been riding our rollercoaster for almost a year and I've been put in the position of the driver, not knowing when I can slam on the brakes as there's still twists and turns to come.

I've just been over on H&N, trying to put someone's mind at ease by telling him some things about our journey.  But as you say, the early days are the scariest ones for us all.  I think your quote should be plastered in every cancer centre in the country, as it certainly gave us a new perspective all those months ago when I first saw it.  I know Debs adheres to it as well.  You're our wise night owl Annette.  Love and hugs xxx

Thanks Gill but you are too kind! Do you know has anyone heard from Sarah? PM’s still aren’t working?

No-one can be too kind to you lass.  I'm wiping tears away after seeing those beautiful photos, knowing the history behind them.  Like Eddie said, we've got emotions for good reasons and it's best to let them out.

About Sarah; no, not seen her around for a while and just hoping she's ok.  The PMs need to return asap xxx

Hi Gill, You are right, the PM age has to be sorted soon surely. It says it “has been disabled temporarily “ now I always thought that meant just for a short time but this definitely seems like a long time to me. I wonder if any of the Community Champions have any info on what’s happening!

I am wondering if there is anyone awake yet? I just can’t seem to settle at all! If anyone has been prescribed Gabapentin for nerve pain, can you please let me know if it works for you?

I’m thinking maybe those who go to bed early evening will be waking up soon. We got some great news yesterday, my niece who is 37 had her first baby, a boy. Her due date was today! No name yet but he was 7lbs 2ons, mum, dad, baby and my sister who is now a Gran for the third time (3 boys) are all doing well. Mum & baby get home later today! She only stopped working last Thursday then on Friday swam 50 lengths of an Olympic Pool and Saturday her and her husband went for a long cycle!

Have a terrific day everyone. My gr/daughters will be here just before 09.00 as we are taking them shopping for a few bits & pieces before they start back to school on Thursday. Then we will go for lunch! Hope everyone is doing something nice today too!