Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi Trev, welcome to our group.

    Sorry you're feeling down; I'm not a cancer sufferer myself but as my fella's carer I can relate to the scary early days, not knowing what the future held and being on my own.  But hey, there are quite a few here who've been through chemo or going through it now, so they could help you maybe.

    Anyway, don't be alone as we're here to help you along, whatever the time of night.  Hugs xx

  • Hi sweetie, yes I’ve felt tired all day. Didn’t equate that with the magnesium, but thinking about it … you could well be right.

    Ive been thinking about Nige, Elise and Sian as well. I’m hoping PM comes back on line, sometime soon.

    im gonna try and get a few hours kip now. 

    I love a good storm, so fingers crossed.

    Love hon xxx

  • Hi Trev, and a warm welcome from me,  that place you mention is familiar to many of us, I've been on my journey over 3 years and I still visit that place occasionally, but for less time, and feeling fearful especially in the early days is normal, the tears will never be far away , but you learn to live with your new reality, please don't deny your emotions we have them for a reason, and a good cry is so good for you.

    Eddie xx 

  • Hi again hon.  Don't reply as I want you to rest.

    Yep, I worry about Sian too and wish she'd come on here to talk to us.  Patrick replied to your post but I thought you might be asleep so I spoke to him, as he's getting himself worked up.  Talk to him in the morning Debs, as he's become reliant on you.

    Fingers crossed the PMs return soon.

    Night hon, sleep tight xxx

  • Hi Trev123 A warm welcome! My husband had chemo a few months ago and although he tried to bury his head in the sand and pretend it wasn’t happening to HIM. I think he felt better when I reminded him that my type of cancer doesn’t respond to either chemo or radiotherapy, so he should be thankful they have offered it to him! To be honest, I think he was afraid of the unknown but it is amazing when treatment works! The CT scan once the chemo finished wasn’t clear enough to see if they got it or not, so he has had to wait another 6 weeks to have another CT which is the week after next.

    I think having cancer is like being on a roller coaster with its ups and downs, you don’t know when it is going to move fast or slow but I think if it is still moving, you are at least in with a chance!

    It is strange how you can be in a room full of people and still feel lonely and alone! I am guessing you have not long had your diagnosis, as your Profile page is not yet filled in but take heart things will get better!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi Helen (Sbird), What sort of Cross Stitch do you do? Those two words take me right back to when I was diagnosed! At the time we had 1 granddaughter of just under 2 years old and I decided I wanted to do a Cross Stitch picture, frame it, so it could be hung in her room and it would be a way of remembering me by talking about the picture. As I love the seaside, that is what I decided to do. Then our dil told us she was pregnant and it was a boy, so I started another CS. I was so terrified that I’d not finish it before I died, I sat up nights doing it! Then what? Our daughter was pregnant with her second child. I thought thank goodness a Seaside Picture would be fine for either sex, so I bought the last pack in the set and again worked night shift until it was finished. Our 3 grandchildren ( 2 girls, 1 boy) are now 10, 11 & 13 years old and they love their pictures!

    The Trial Drug I was on for over 3 years worked its magic and I’m still here to tell the tale. I’ve recently taken up crochet, it is much quicker!!! Do you crochet? I will attempt to put 1 of my CS here but don’t know if it will work! Time will tell!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Evening Annette.  A brilliant post to Trev and absolutely sums it all up.  Hubby and myself have been riding our rollercoaster for almost a year and I've been put in the position of the driver, not knowing when I can slam on the brakes as there's still twists and turns to come.

    I've just been over on H&N, trying to put someone's mind at ease by telling him some things about our journey.  But as you say, the early days are the scariest ones for us all.  I think your quote should be plastered in every cancer centre in the country, as it certainly gave us a new perspective all those months ago when I first saw it.  I know Debs adheres to it as well.  You're our wise night owl Annette.  Love and hugs xxx


    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Thanks Gill but you are too kind! Do you know has anyone heard from Sarah? PM’s still aren’t working?

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!