Awake and up all night

Spoiler alert, I'm having a rant.

I finally got my rheumatology appointment today, yippee NO, dated Feb 2026, I have chronic osteoporosis in hips, shoulders and spine with over 40 microfractures, arthritis, spinal stenosis and a few tumours in my spine too, advised not to lift anything over 9kg and not to fall,"priceless," anyway I've also been on vitamin supplements as well as bisphosphonates for over a year, which are not only not working but damaging my Gastro intestinal tract from my esophagus to rectum, dysphagia, duodenitis, pyloric sphincter damage, high risk of fistula's and a few rectal fissures. I've been bleeding for over 2 years.

All I've asked for is a Switch from pill to IV Bisphosphonates, a reasonable request considering the consequences of any further deterioration to my GI tract, so why do I have to wait 7 months to see a rheumatologist, and have my meds changed when they know the problems they are causing, anyway I have 3 more MDT meetings between now and then, what could possibly go wrong.

.....and Sheila xx 

Oh Eddie, you poor lad.  That's an awful read and really rotten for you.  Knowing what you do know about the ropey effects the meds are having, what has your team had to say about it?  Have you asked if tapering would be advisable?  I'm not doctor but I do know how to research and have successfully got my fella off three separate meds that were doing him far more harm than good.  My decision making was fully endorsed by his oncologist.  But that's our situation, totally different to yours.  It's just I think a lot of quackery goes on, often to the detriment of the patient.

I'm sorry you've been presented with the ridiculous wait Eddie, it's scandalous in the extreme.  I really hope you can get something sorted out and soon.

Big hugs to you you and Sheila xxx

Thanks Gilly. I'm at my hospice tomorrow and seeing my nurse consultant, I'll ask her to arrange an appointment with the resident consultant, to hopefully move things along, my GP is fab but there's only so much she can do and have left a message with my CNS. It's been very quiet on the thread today, yourself included my friend, I hope all's well in West Yorkshire, and there was some good news, three of my cancer friend's and I are off to Ayr and Belfast for a few days soon fab. 

love Eddie and Sheila xx 

Hi again Eddie.  Aye, it is quiet; a friend who lives in Portugal said she'd had problems but thinks it's because they're updating the site.

Anyway, all's good here and I've almost got Sky sorted, so football ahoy!  I've also been busy sorting PIP and choosing a recliner armchair; the latter is mainly for me and my creaking joints!

Hey, your trip away should be fantastic.  I've always wanted to visit NI as the scenery looks gorgeous.  Will you be visiting Giant's Causeway at all?  You'll enjoy the trip whatever as you're that kind of guy.

Well let's hope you get sorted to your satisfaction tomorrow, my friend, fingers crossed.  Aw, that little kitty is a real sweetheart and she deserves a loving home, hopefully soon.

Keep smiling and hugs xxx

Morning Gill, Eddie... I've had problems all night trying to connect via my ipad .. still have. Its OK using my phone. I will ask hubby to take a look when he gets up as he's s lot more tech savvy than me.

Hope you both got some rest. XXX

Morning Debs.

I only use my phone and haven't had any problems, apart from getting logged out the one time.

Is Big Buck feeling any better hon?  I really hope so.  Hugs xxx

Morning 

Sorry to hear about the long wait for your appointment Eddie but I hope you enjoy your trip.

H

I had just over an hour of feeling really sick during the night, I took one of my anti-sickness tablets and I eventually settled down again, I'm just feeling a bit tired now.  We're meant to be going away in the motorhome today for a few days, I'll see how I feel after a shower and some toast. 

H

Fingers crossed the trusty toast standby works Helen.  If you do get off today, enjoy your trip to the max!

Love Gill xx 

Morning Gilly, I hope you slept well my friend, yes the computer gremlins are never far away. It's just great we have a place like this and good choice picking Sky over Virgin, I had Sky since it started, mostly for the kids/grandkids though I do love golf, I switched to Virgin recently and it's such a complicated system with poor aftercare.

I hope you've picked up some tips from the gang on applying for PIP, oooh a riser recliner sounds fab, make sure it gets through the door, I'm not there just yet but I did put longer feet on the sofa, I have a pic it also has one of my homemade quilts on.

I'm not sure about the Giants Causeway, Gilly, the fall risk is horrendous, but Belfast with the girls will be fab, as will Ayr, I  maybe even meet up with a friend on the forum too.

I'm sure we'll make progress at the hospice today, and I can always go private if needs be, enjoy your day my friend.

love Eddie and Sheila