Awake and up all night

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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

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  • While I've no need to claim any benefits I feel for you all having to navigate the system. I'm sure it would pay to have trained staff that go to actually visit claimants in their homes to verify justified claims and weed out false claims. 

    Good morning BTW, I  slept really well last night for almost 8 hours!  I hope you've all managed to get some sleep. 

  • Eddie, you have just knocked the nail right on the head!!

    that just about sums it up, why assessing people with serious and often multiple health conditions shouldn't be left to someone who has no idea of the realities of our situation, and who probably have instructions from above which puts them in a difficult predicament, no doubt anyone with a conscience won't be considered, 

    I used your full post as a quote!

    Steve (SteveCam)

  •    

    This is so true 

    They want us to give up Jane and make the system very difficult for vulnerable people which really angers me!

    The stress, trying to appeal has, is enormous.  Not to mention the amount of questions to fill in!

    It’s sad that we have to fight but it’s seems to be common.

    Take care, both of you.

    Steve (SteveCam)

  • Sarah,

    This is the sort of person they need.

    -I’d be on the side of the person on the other end of the phone getting too involved in finding out if they were ok,

    It's going to be all AI soon, so there'd be no chance for anyone!  I'm not trying to be Mr Doom and gloom.

    Steve (SteveCam)

  • Morning H

    I’ve been looking at those types of frames just recently again-I had one upstairs and one downstairs for a time but we live in a Victorian terraced house which is narrow and manouevering round the furniture was really awkward- it might be an idea to try again with one. I had a trolley on wheels I could hold onto and move from the kitchen to the living rooh with my cup of coffee or whatever, but it’s finding places to store all these things!  It sounds like it’s really helped your father in law to get out with the frame. 

    We also tried putting the plastic step we have for me getting into the shower at the patio doors and that was quite good-I could do with getting a grab rail on the wall outside to make that feel safer. My main issue is physically lifting my leg with this osteoarthritis.

    Sarah xx 


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  • Morning Steve

    This is so true-Eddie’s right.

    Sarah xx


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  • AI will be doing almost everything as time goes on-it really scares the life out of me, I would say we need people dealing with people, but if they are not the right people-uncaring and focused on saving money- we aren’t any better off. Assessors definitely need better training, that’s for sure.

    Sarah xx


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  • It’s immensely stressful.The people doing the assessments are clueless and have no idea of what its like to live with a chronic health problem/disability.
    My partner John is disabled with a rare muscle disease and the fatigue meant he had to give up work.
    I had to give up work because of ill health.We both have auto immune conditions.Love Jane 

  • Morning Helen.

    The most feral cats/kittens I had on the go was six.  The two eldest had been abandoned by their owners, when they got a dog, and the kitties came soon after.  Getting one of the chief honchos round from the RSPCA proved fruitless; the options were to put them down or I took them on, which I did.  I was out working all day, so bought two weatherproof pods, and my close family helped with their food.

    My little brood was gorgeous - friendly and tame, they were around for many years and I loved them all x

    PS. My mam also used walking frames, one upstairs and one down, and we got her a chairlift installed so she could remain in her home, as she wanted.

    Love Gill xx 

  • Hi Helen, I'm ok financially, having a life shortening illness makes that so, my nurse put it to me, I'd paid fully and more for a pension I will never see, why not claim for something your entitled to, so I wasn't stressed if I received it or not, but I can appreciate how awful the process must be to those that do. allotment friend looking for a loving home.

    love Eddie and Sheila xx