Awake and up all night

Sarah,

This is the sort of person they need.

SarahH21 said:

-I’d be on the side of the person on the other end of the phone getting too involved in finding out if they were ok,

It's going to be all AI soon, so there'd be no chance for anyone!  I'm not trying to be Mr Doom and gloom.

Morning H

I’ve been looking at those types of frames just recently again-I had one upstairs and one downstairs for a time but we live in a Victorian terraced house which is narrow and manouevering round the furniture was really awkward- it might be an idea to try again with one. I had a trolley on wheels I could hold onto and move from the kitchen to the living rooh with my cup of coffee or whatever, but it’s finding places to store all these things!  It sounds like it’s really helped your father in law to get out with the frame. 

We also tried putting the plastic step we have for me getting into the shower at the patio doors and that was quite good-I could do with getting a grab rail on the wall outside to make that feel safer. My main issue is physically lifting my leg with this osteoarthritis.

Sarah xx 

Morning Steve

This is so true-Eddie’s right.

Sarah xx

AI will be doing almost everything as time goes on-it really scares the life out of me, I would say we need people dealing with people, but if they are not the right people-uncaring and focused on saving money- we aren’t any better off. Assessors definitely need better training, that’s for sure.

Sarah xx

It’s immensely stressful.The people doing the assessments are clueless and have no idea of what its like to live with a chronic health problem/disability.
My partner John is disabled with a rare muscle disease and the fatigue meant he had to give up work.
I had to give up work because of ill health.We both have auto immune conditions.Love Jane 

Morning Helen.

The most feral cats/kittens I had on the go was six.  The two eldest had been abandoned by their owners, when they got a dog, and the kitties came soon after.  Getting one of the chief honchos round from the RSPCA proved fruitless; the options were to put them down or I took them on, which I did.  I was out working all day, so bought two weatherproof pods, and my close family helped with their food.

My little brood was gorgeous - friendly and tame, they were around for many years and I loved them all x

PS. My mam also used walking frames, one upstairs and one down, and we got her a chairlift installed so she could remain in her home, as she wanted.

Love Gill xx 

Hi Helen, I'm ok financially, having a life shortening illness makes that so, my nurse put it to me, I'd paid fully and more for a pension I will never see, why not claim for something your entitled to, so I wasn't stressed if I received it or not, but I can appreciate how awful the process must be to those that do.allotment friend looking for a loving home.

love Eddie and Sheila xx 

Spoiler alert, I'm having a rant.

I finally got my rheumatology appointment today, yippee NO, dated Feb 2026, I have chronic osteoporosis in hips, shoulders and spine with over 40 microfractures, arthritis, spinal stenosis and a few tumours in my spine too, advised not to lift anything over 9kg and not to fall,"priceless," anyway I've also been on vitamin supplements as well as bisphosphonates for over a year, which are not only not working but damaging my Gastro intestinal tract from my esophagus to rectum, dysphagia, duodenitis, pyloric sphincter damage, high risk of fistula's and a few rectal fissures. I've been bleeding for over 2 years.

All I've asked for is a Switch from pill to IV Bisphosphonates, a reasonable request considering the consequences of any further deterioration to my GI tract, so why do I have to wait 7 months to see a rheumatologist, and have my meds changed when they know the problems they are causing, anyway I have 3 more MDT meetings between now and then, what could possibly go wrong.

.....and Sheila xx 

Oh Eddie, you poor lad.  That's an awful read and really rotten for you.  Knowing what you do know about the ropey effects the meds are having, what has your team had to say about it?  Have you asked if tapering would be advisable?  I'm not doctor but I do know how to research and have successfully got my fella off three separate meds that were doing him far more harm than good.  My decision making was fully endorsed by his oncologist.  But that's our situation, totally different to yours.  It's just I think a lot of quackery goes on, often to the detriment of the patient.

I'm sorry you've been presented with the ridiculous wait Eddie, it's scandalous in the extreme.  I really hope you can get something sorted out and soon.

Big hugs to you you and Sheila xxx

Thanks Gilly. I'm at my hospice tomorrow and seeing my nurse consultant, I'll ask her to arrange an appointment with the resident consultant, to hopefully move things along, my GP is fab but there's only so much she can do and have left a message with my CNS. It's been very quiet on the thread today, yourself included my friend, I hope all's well in West Yorkshire, and there was some good news, three of my cancer friend's and I are off to Ayr and Belfast for a few days soon fab. 

love Eddie and Sheila xx