Diagnosed 34 er/pr her2 positive with positive lymph nodes

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  1. Diagnosed 34 early November. I originally went in with two small lumps which I thought were suspicious and upon biopsy new they were cancer it turns out that the original diagnosis wasn't as expected on the ultrasound I showed two small tumors and no lymph node involvement. 
  2. I was scheduled for 2 lumpectomy and sentinel node biopsy which i had before Xmas 
  3. My results clear margins on both tumors (great) however 2 out of 4 lymph nodes came back positive.
  4. To say I was upset is an understatement. 
  5. Ct scan clear.
  6. I'm still waiting on having a bone scan did anyone else wait over 2 weeks for a bone scan?
  7. I also havnt been offered futher surgery to clear the rest of my lymph nodes as apparently radiotherapy and chemotherapy will help mop up stray cells. I can't help but think why am I not having a full clearance and I'm yet to speak to anyone who has been in my situation? Is their anyone who had positive lymph nodes and hasn't had futher surgery? Trying not to panick.
  8. Also is there anyone who waited 2 weeks just to have a bone scan?? 
  9. Any help would be greatly appreciated 
  10. Thank you xx
  • Hello   I was diagnosed with multicentric TNBC high grade cancer but with lymph nodes +ve for her2 also high grade .  
    My bone scan took about a week and a half  and it was all clear. It’s hard not to panic but it will be fine.

    The hospitals have a cancellation list, you can ask to be added onto it so you can be accommodated if someone cancels their appointment. 


    Also I haven’t been offered surgery , I have metastatic lymph nodes all the way up to my collar bone.
    I am going to be doing Chemo 6 rounds and then they will look into surgery and radiation.

    If there is disease in the lymph nodes, there is possibility it might have spread and chemo first helps to eliminate or reduce that risk of distant spread and as per my doctor the chances of recurrence is higher without chemo. 

    Don’t worry be calm and positive it will all work out .