Just diagnosed at 39 - any advice greatly welcome!

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Hello everyone 

I am a 39 years old mum of a 3,5 year old and an 11 month old. I found a tiny lump a few weeks ago and immediately told my GP. Turned out to be cancer with a tiny amount in my underarm lymph too. I am not triple negative and am estrogen positive so I’m now looking at chemo, surgery, radiotherapy and several years of hormone therapy. 
has anyone been through or is going through a similar experience? 
thanks so much 

  • Up to 4 weeks for scan then two for results. I’ve asked my nurse if I can do the chemo first rather than wait another 4 weeks for the surgery as this seems really unusual and unsafe. It’s already been three weeks since my lumpectomy. 

    how long was it between yours and how many lymph nodes? Was yours a grade 3? Mine is really aggressive which is terrifying me. X

  • So I was diagnosed after finding a little lump when my baby was about 10 months old and I was referred to the one stop breast clinic where I had a biopsy and that’s when I was diagnosed 2 weeks later with grade 2 and lymph involvement. I was then sent for an MRI and CT scan which took place over another couple of weeks and I think chemo started soon after that with a 6 month schedule. Chemo finished in November and then I had surgery yesterday which will be followed by radiotherapy and then years of tamoxifen. 
    do you know if your cells are hormone receptive? 
    I know it sounds very very difficult but until you have those CT scan results please try not to jump to conclusions. I also know it’s very hard to not assume that every ache and pain you now feel in your body isn’t related to cancer. X

  • Hi. I had a masectomy on 6 Jan 2021 and didnt start chemo unt 4 March. Your body needs time to recover. It all depends on how big your tumour is as well. Another few weeks for surgery wont make any difference regardless of grade. Mine was aggressive too. If you were to have chemo you wont be able yo have your op until the chemo is finished. I had lymph node op same time as mastectomy. Trust your team they know what they are doing. Good luck. 

  • Thank you. Sorry, just looked back and realised you’ve had to repeat yourself as you’d given this info already Blush. Hope you aren’t feeling too rough after the node clearance. Dreading the drain thing as I’ve been trying to hide everything from the kids until now but will have to tell them something soon. They’re so sensitive and k feel terrible bringing this into their lives.

  • Thanks- just so worried as biopsy and ultrasound and mri showed lymph nodes clear then only 3 weeks later four of them were found to be affected at surgery so now I’m thinking it’s really grown fast in that time….or they missed it somehow x

  • Never blame yourself. Its not your fault its just we have been very unlucky. Im sure once you tell everyone they will be very supportive. Take care of yourself x

    • They can never really tell about the nodes until they are put under the microscope and analysed. I was exactly the same. Have you had a CT? X
  • They are hormone receptive - er and pr but HER2 negative 

  • They’re booking the CT for in the next four weeks….before the full node clearance. I don’t even know if I want the scan. I cannot face the thought of it having spread. I’ll just fall apart completely. Maybe I’d rather not know. Disappointed

  • Don’t worry about me repeating myself, I don’t even remember what I said yesterday these days! 
    I felt similar to you - before I was diagnosed I didn’t feel right. I was breast feeding at the time so I could have ignored it but I didn’t and I went for a private ultrasound but they saw nothing and lymph nodes clear but then 5 months later I was diagnosed. So I was also left confused about how they saw nothing one month and then stage 2 cancer only a few months later. 
    Forrest1865 is right though these specialists know what they’re doing and you must try and have faith in them. They deal with this day in day out and the other thing I’ve learnt is that the way I think cancer works is not how it really works if that makes sense! 
    I keep having very achy shoulders so I’m convinced it’s spread to my shoulders but I keep being told that that isn’t how it works! X