Upcoming surgery

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Hi all, 

I have been recommended this group as I have been feeling quite isolated in this process. 
Last year I found out I had inherited the BRACA1 gene from my father’s side (who I have next to no relationship with) and have decided to go forward with a reconstructive double mastectomy. 

At 25, no kids etc I’m worried about how this is going to change who I am in a way. 

my partner, friends and family are all supportive but it doesn’t feel like anyone understands? It’s always: this is the right thing or you’re able to take control, you’re lucky really. 
And I am fully accepting that the operation is the right thing to do but I just don’t feel I have anyone to properly talk about it with without people being overly sympathetic? 

I’ve also never had to be in hospital before - not broken a bone or anything like that so it feels quite daunting that my first time will be for something like this. Any tips? Insights? 

not really sure what I want out of this post but guess I just want to be heard with my concerns and worries? 

thanks :) x

  • Oh my gosh please don’t feel alone! It’s such an enormous weight to bear but we’re all going through it together. Search for BRCA Chat on instagram - Christen and Lisa are amazing and they organise meet ups and online talks which have really helped me since I found out in November that I carry the BRCA 2 variant. There’s so much to learn and understand but take your time xxx

  • Thank you. This is super helpful- I have given them a follow! 

  • Hello! I’m not sure what the rules are here on swapping details. Only this evening did I think to even consider if MacMillan support BRCA patients. They do, and this was the first post I saw. I am nearly 40 and I do have children but I too am terrified of being in surgery (and have very difficult relations with my parents). I am so worried about how I will feel about my body, and my sex life too. I am in Oxfordshire I would love to chat xx big hugs xx 

  • Someone mentioned above about BRCA chat on instagram and I have followed them and they do meet ups and online sessions with other people which look really positive!