Hello, I’m 28 and found out I’m braca2 positive, It doesn’t feel like to much of a shock because I’ve been fighting to get tested for 7 years, since my mum passed. I have a significantly strong history of cancer and have always know I will opted for preventative surgery. Would anyone be able share there experiences in regards to timelines? As I can imagine I will have some along the way. Thank you
Hi Lizziex and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Sampa
I am sorry you have been diagnosed with the BRCA gene. Even though you may of expected this, I know what a shock that would have been and how much this will change your life. Having the surgeries although daunting, is the best thing you can do for yourself to insure you remain cancer free and live a long and healthy life. Years ago they would have offered a full hysterectomy alongside the mastectomy but my niece just had her ovaries and tubes removed. This surgery was done first, and her double mastectomy was done a few months after.
Have you spoken to your team yet about your decision? Do you have other family members that have already been tested, or now need testing? Although I do not have BRCA myself I am surrounded by family members that do and I am happy to chat.
I am sorry to hear about your sister. That is hard on you all. Does your dad receive regular prostate checks?
I think the timescale for surgery depends on what area you live in. For my family waiting times have really varied as we are living in all different parts of the UK. One of my relatives has been waiting since October for the genetic referral just to have the BRCA test, and has just been told that it will be within the next 26 weeks! It is so frustrating, you just want to know and then get the surgery done, the waiting is the worst bit!
Thinking of you and your family, I am so sorry you are all having to deal with this.
I hope it all gets sorted for you and your family. My referral for testing took about 6 months from them accepting the referral to getting the results.
Good luck with you and your families journey.
Take care 
