Pancreatic cancer

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My partner died last year from pancreatic cancer, I looked after him at home apart from one stay in hospital which made him in so much more pain, never again did he go back, he died within 3 months of diagnosis at home . He was big healthy man that went down so fast. Why is pancreatic cancer never talked about??? It's a silent fast killer......I'm angry it's not talked about anywhere and I miss my partner so so much.....can we highlight it somehow.......could say much more but enough for now......

  • Hi, re grief counselling, everybody is different.  I had 6 sessions a few months after Rob had died but it was too early for me.  I tried again after 18 months and found really helpful as my brain was clearer and had lots of things to talk about.

    The secon d time I wrote down my feelings and what I wanted to get from the sessions.  The What Ifs was a big part of the discussions.

    one of the things I found useful was writing a diary (this was a suggestion from somebody on this site).  I bought a book on Amazin called Letters from my husband and wrote down everything I was feeling and how I missed him.  I ranted at him for leaving me etc.  Reading now those entries,  has shown me how far I have cone 2.5 years down the line.

    Good luck

  • Thank you so much for replying 

  • Hell Barty,

    Pancreatic cancer does have my hatred since I lost my lovely wife to it in 2015. You will I presume have learned much more of this disease since your last post. People do survive this cancer. I support pancreatic research uk with donations because this is my way of fighting back, wanting to defeat the cancer that took so much away from me but it also took the most wonderful person who had fought bowel cancer 4 times and won through. There are great people working to beat pancreatic cancer but  they can only do so if they have the means, they depend so much on the publics awareness which they try to alert to its effectiveness at taking lives. I was so angry to have my wife snatched away just after she had come through a major operation and had put up such a fight. My only way to fight it was to give those brilliant medical teams the tools and equipment to do this and also to train more brilliant young minds to join with them in their battle, my battle, your battle.

  • Thank you for sharing your stories, whicj has given me the strength to reply. So much of what I am reading here is chillingly familiar. A month ago I lost my beloved wife of 20 years to this horrendous  disease. All started a month after she started taking metformin. Took a further ten months, despite numerous visits to A & E, GP'S and private consultations amongst other things to get diagnosed. She died 3 weeks after her diagnosis. 

    I'm angry that  a 50 year old woman with stomach pains wasn't considered at risk for pancreatic cancer. All hospital referrals to see a specialist were triaged and downgraded to routine leaving a waiting time of over 12 months. The first specialist we got to see was the one to tell us she was terminal . 

    In the meantime I now have to somehow find the strength to bring up 4 devastated children (15,15,12 and 7) , whilst feeling totally bereft and not seeing any light at the end of the tunnel. 

  • Hello 

    I just wanted to reach out to say how sorry I am for your loss and now with your young children the suffering you are experiencing. What a horrible time. Glad you could come onto this forum as it is such a help and comfort to us all in similar situations.

    Step by step and slowly you will find a way through it. Hope you have other help/ family near you.

    Keep up with this forum. A godsend for me.

    Hugs are there.

    Fifinet 
    As Voltaire, the French writer said " I am going to be happy because it is good for my health "
  • Hi, I also support and have taken part in surveys and discussions how Pancreatic Cancer UK can help those diagnosed.  Sadly I didnt know about them when I needed help.

    More money is needed for research as its seriously underfunded.  

    Lets hope that one day they find a test to diagnose early and save lives.  There are lots of research going on at the moment to do this