Hello everyone,
I have just joined this group after a period of 5 years tomorrow since my dear wifes passing due to Glioblastoma.
Even though this time has passed and life goes on the horror of events with her illness still remains fresh in my mind
with so many unanswered questions about her care and diagnosis remains in my mind.
The whole issue of her care whilst in Morriston hospital leaves me cold.
Lack of communication from the specialist and mis diagnosis right up to her time of passing when I was delivered with the shock verdict of
her dying to a primary tumour leaves me cold.
Initially I was led t believe she had Encephalitis and was being treated with Acyclovir,she seemed to improve and was allowed home.
She seemed to jog along ok for a while but was re-admitted later after much drama not least trying to convince paramedics to take her to hospital
after a violent 1hour seizure/fit .
A series of dramatic events seizures caused by mind beding drugs eg Keppra etc.
Eventually she was re admitted for the final time and never returned home some 1 year from the onset of this terrible condition.
We had been married over 45 years and were childhood sweethearts
Her loss was devastating.
A particular saddening twist to the story is that she failed to see her beautiful twin grandaughters who were born just over a year after her death.
She did however have memories of her grandson who was 2 when she died and the love of her family.
My life has moved on and my love for her remains as strong as ever but I I still carry the burden of her care whilst in hospital despite a degree of sympathy for
the underfunded and overworked NHS staff.
Many questions still remain.............
Best wishes to all who have been bereaved and those who are only starting thier journey.
Hello
such a very sad story, I really do feel for you, communication doesn’t seem to be a strong point when getting NHS care, unless you’re very lucky.
my Wife Linda missed the birth of her first great grand child by 6 months, which was and still is deeply saddening. My Wife Linda and I I were also childhood sweethearts, well 17, married at 18, divorced in 1984, and remarried in 2008, although I remarried in 1998, it always feels to me that I was married to Linda throughout, she said she never stopped loving me, throughout, I just wasn’t strong enough to be the husband she deserved. I was blessed with a second chance, when we met again in 2005. Have so so many great memories as I am sure you do, but it really doesn’t take away the deepest pain I have ever known. Take care my friend
Linda You are my best memory, You are all of my best memories
