Still struggling more than 2 years after mum's death

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I lost my wonderful mum over 2 years ago after she fought so hard for 3 years.

The last 6 weeks of her life were awful and I still have nightmares about it. The doctors made countless mistakes, consultants were obnoxious and they refused to allow her to go to a Hospice. After she died I was left alone in a room with her for 7 hours. None of the staff came to see me despite them knowing I was there.

During her treatment I was her sole carer which led to epilepsy due to the extreme stress which has since resulted in a recent mini stroke.

I'm totally on my own now and am really struggling.

Sorry if this post is rambling 

  • Hi Barneythedog

    It’s Wayne here from Macmillan’s Online Community team. I saw your post and wanted to offer some support whilst you are waiting for other group members to reply.

    I want to say how sorry I am to hear of your mum’s passing. It’s understandable to hear how difficult it is for you at the moment.  Please know that Macmillan will continue to be here for you all to navigate your way through this.

    It’s natural to experience a range of emotions when coping with the loss of a loved one and I hope you’ll find some comfort from being a part of our Community.

    Please remember, if you would rather speak to someone directly, we have our Macmillan Support Line when you want to talk things through with someone for advice, emotional support or even just a listening ear. Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00. If you would rather speak to them via message, you can also do so on our live webchat.

    If you think accessing some specialist bereavement support would be helpful, there lots of useful information in Macmillan’s ‘coping with bereavement’ booklet. It includes details of other specialist organisations trained to support people with their grief such as Cruse bereavement care.    

    They have a free confidential helpline where you can pick up the phone and speak to their team of trained bereavement volunteers on their helpline by calling 0808 808 1677. You can click here for their opening times.

    If you are struggling, we would recommend discussing how you are feeling with your GP or medical team. If you need help and it’s outside of your GP’s opening hours, please call the non-emergency NHS 111 on 111 for England and Scotland. NHS Direct Wales on 0845 46 47 if you are from Wales. If you’re in Northern Ireland, you can find details of an out of hours service here.

    Additionally, there are different charities that can offer guidance and support with your mental health in mind: 

    • Mind is a UK-based mental health charity, which you can call on 0300 123 3393 or text 86463 for mental health support.
    • Hub Of Hope is the UK’s largest mental health support directory. It’s a great way to locate services which are best to serve the help you need.

    I hope the above information is helpful. If you need any assistance using the Online Community or need some additional support, please don’t hesitate to email Community@macmillan.org.uk or send a private message to the moderator account.

    You are not alone Barneythedog – we are here to support you.

    Best Wishes,

    Wayne

    Macmillan Online Community Team

     

  • Hi

    Thanks for this.

    I have found via a work colleague that my employer has something called an assistant scheme. I will contact them to see what they can offer