Well my Mum is about to be 92 and her health has been dropping. I am having a couple of days to myself right now. I was supporting my mother alone this Christmas and New Year - my sister did not visit from Nov until next weekend - Mum's birthday. It was hard but we did manage to kind of connect better on Christmas Day. But quite a lot of the time I was tense as each time we went out I was worried she would fall or if I could cope with all the parking, sorting out the wheelchair, making sure she had what she needed. I also did the care role - her morning and evening carers often did not come and they were cancelled for Christmas Day and Boxing Day.
Well the thing is my brother died of cancer - aged 64 in Feb 23 and last year I did quite a lot of symbolic things coming to terms with it as there was no goodbye for me or my sister or mother. Only his wife was there and my brother only told us he had stage 4 - four weeks before he died - and we didn't see him. I just spoke to him once on the phone for 20 min after he told us he had stage 4. The last two weeks about he was in hospital anyway and his wife didn't let us speak on the phone or visit. So it has been hard. There was no goodbye and I have tried other ways of saying goodbye and had some kinds of trauma therapy to be honest. I also tried to drive to see him with a twisted ankle and three months later had to have an operation on it and in a weightless boot for six weeks, all fine now after quite a few months of physio. So I come through it
Last year I did a walk for Cruse and I went on a mountain walk (As I also got breast cancer and this walk was for those who had been touched by cancer) and then I also wrote poems and I planted an anenome in his village over Xmas.
But now I have to be ready for my mother passing. And it comes up again that there was no proper farewell for my brother. Friends of his did organise a celebration of his life that my mother sister and I went to - in August 23 so that was something. My mother came with me when I planted the anenome.
So it is just sad I guess and I just thought I would share it. My efforst are really to find some kind of symbolic way some kind of metaphor that helps to catalyse the grief I guess.
Anyone else got ideas about good goodbyes ? I mean my mother could live another five years or just a few months I don't know and maybe because of the shock about my brother I also feel she has grief she has not been able to process - could not say Goodbye to my brother. I have walked by the sea and thinking of trying to get a bench for him as he loved sailing - to respect his life
I’m Anne, one of the Community Champions here on the Online Community, and I'm very sorry to read that your brother died a couple of years ago without you being able to say goodbye to him. That must have been very difficult for you, and I can understand why you want to see how others approach saying goodbye to a loved one with your mother being very ill.
As you know, the online community is divided into different support groups so I'm going to recommend that you also join and post in the supporting someone with incurable cancer group where you can discuss things like how to say goodbye with others who have a loved one with an incurable diagnosis.
If this is something that you'd like to do, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
Sending virtual ((hugs))
Hello Itsnoteasyatall,
It sounds as though you have had a tough and sad time with the loss of your brother and with the situation with your mother and it seems helpful to spend a bit of time with yourself right now if you find comfort in this.
You seem good at finding thoughtful and meaningful ways of saying goodbye to your brother symbolically and you can keep doing such things as they occur to you from time to time as it is a nice way of continuing to keep a loved person in mind.
My long-term partner died after only a few short weeks after diagnosis and during the last fortnight he had no energy to talk to anyone and didn't want to see anyone except for me so not everyone wants to be surrounded by family. He was very introvert and never liked sharing his feelings at the best of time so I gave him what he needed - a lot of solitude and company and care only when he asked for it and I did not ask him how he felt as I knew this would distress him.
I had to have my needs met elsewhere as he was on a journey in which he was not able to be there for me and when this is the case we do have to find our support elsewhere. A couple of my closer friends were not able to be there for me as I had hoped but a few acquaintances really put themselves out for me which was unexpected. I would encourage you to find support and care from those who are able to provide it - not everyone can.
If your mum is not able to process grief in the way you would then that is her personal way of coping - we are all different in what we can manage. Some people are good at sharing their inner world and others don't feel comfortable doing so.
As with the special ways you have found of continuing to be connected with your brother, I do similarly with my partner - little things from time to time that are special and enable me to feel connected. It seems to me you are managing really well even though you have lost your brother and are preparing to lose your mother at some point.
My warmest thoughts to you, Christine
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