Mum

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Hello I have very sadly just lost my Mum to gall bladder cancer .

She was taken into hospital on new years eve with suspected gall stones but was diagnosed with end stage cancer two days later.

Sadly they said chemo wouldn't be an option as too late.

A stent was inserted to help with pain.

She was sent home a month later and we organized care but my 84 year old  Dad sadly couldn't cope with the in between times so hospice stepped in and she went into their 4 bed ward for roughly one week

It was so lovely and Mum seemed to be happier knowing she was being looked after and her pain was managed.

However we were told she couldn't stay indefinitely and maybe a care home would be able to  take her in with 24 hour care.

We found one nearby and she was admitted.

She spent roughly 10 days there .

Her final 48 hours were awful ...terrible pain management she was in pain every time we were there and they took ages to attend to her .

They would leave food and drink for her by her bed but by this time she couldn't lift drinks herself and hadn't eaten for weeks.

Her last day was truly awful and my poor Dad had to witness his lovely wife in excruciating pain ...literally screaming.

Hospice intervened on the Monday and asked for a syringe driver to be given .

We called in on the Tuesday and it still hadn't been sorted.The nurses were so unatentive and didn't seem to know what to do.

Again so much pain and discomfort.

She passed away early Wednesday, we were told the syringe driver was due to be fitted that day ....too late!

Has anyone else experienced this ?

I am in total turmoil and can not let this rest.

The overwhelming feeling of letting her down is excruciating. 

What can I do ?

  • I'm so terribly sorry for your loss and what experience you lived through. I lost my mother 2 weeks ago tomorrow and she died in hospital ... There are complaints procedures you can follow to feedback your care concerns, we will be doing this in the future as we also have concerns about her care and general communication or lack thereof which had it been better would've improved my mother's quality of life during her time there... You have upto 12 months to complain so take your time to grieve.

    It's so awful , please don't beat yourself up you trusted professionals with your beloved mother and they let her and your family down ... Please take the guilt off your shoulders lovely, it's easier said than done I know.

    Sending all my love 

  • Hello Tilly24, 

    Thank you so much for your kind words ,sounds like you are also dealing with guilt ,pain and trauma after losing your dear Mother too.

    Its unbearable isn't it .....im also aware of not vocalising it as it will upset my Dad too much so I feel totally alone in this grief ,guilt and anger.

    I will try and take my time to grieve but will have to follow up a complaint at some point as I can't bear to think of someone else's loved one going through this.

    Thank you again .

    And take care of yourself.

    Meep247

  • Hi - I am in a similar position with my husbands time in hospital. They forgot to give him pain medication for a week. He moved to a hospice where my sons stayed with him 24 hours a day as they felt they needed to monitor him and get help when he needed it. I will be making enquiries/complaint. Even though this is very upsetting for you I would advise you to take time for you and your Dad right now. You can make a complaint when you’re feeling a little stronger.

  • Thank you ...im sure over time we will both remember the good times but at the moment I'm so very angry ,upset and let down by the people I thought would care for my Mum in her last few days .

    Thank you for sharing your simular experience. 

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