I'll take you back in time for at least 12 months prior my mum was complaining on pain in her lower back and for my mum to mention it, it must of been bad she never complained a trip to the doctor told to lose weight. Weirdly at the time I had actually noticed my mum had gained weight. Anyway mum started having monthly trips to the GP she had bleeding problems that they said was a front and back prolapse was treated. However problem just never seemed to go away she then started having bowel problems lose stools and gastric issues a stool sample was sent off and she had a condition known as hpylori (spelling) and was treated with antibiotics and gastric protection... doctors visits started to become more regular urine infection and this back pain just wouldn't go. I started to attend appointments with her. I wish I did more looking back. February 2019 I asked for an scan i thought maybe it was a gallbladder issue. Scan came back normal no issues kidneys looked great no gall bladder problems told to lose weight again.. Doctors appointments began to become every 2 weeks was given naproxen and omeperazlole June 2019 id had enough and complained I wanted something done further tests... They sent mum to hospital for the evening promising that more would be done there. They said it was gastric and would organise a ct scan within 2 weeks and she would hear within couple days of appointment. There was no word so I took matters into my own hands as when mum left the hospital her left leg started giving out on her. Scan was booked in for 6th July mum couldnt move her left leg I had to get a wheel chair. I mentioned this to the scanning department but it feel on deaf ears in my opinion. From the 6th of July things moved very quickly 7th July encreased back pain 8th July told me not to worry everything is fine 9th July trip to doctors I run in the room ahead and explain I think something major is going on my mum can't walk she can't move her left leg and needs support doctor states a xray done in June shows bone density problem will send for a scan gives amitpyritine medication and says if she feels numbness in front and back to go hospital. 11th July mum collapsed at home I take her with a struggle to a and e I advise a ct scan was done on 6th July doctor tells me he can not view says its bad constipation and sends mum home with movicol sachets 11th July mum collapsed again no longer can feel her legs cant move toes or feel touch she is paralysed ambulance blue light to hospital I explain to doctor everything that has happened.... he is shocked and says sorry its the early hours of the morning. Tells us we shouldn't of been sent home earlier that day and looking at scans we shouldn't of been sent home after ct scan either Pulls curtain round I knew it was bad I hold mum and dad's hand its 3am It looks like kidney cancer Its in the right kidney has spread to the spine and causes a spinal cord compression its affected c9,10,11,12 and its in L and higher up could be in ovaries womb mum needs to be transfered. They tried in the other hospital to help mum never got movements back Cancer already way past treatment.. its way beyond stage 4 they did give 1 blast of radiotherapy thats all they could give Mum had to wear a brace to sit up any more than 45 degrees we was told a year if we was lucky Mum past on 28th January the day her 6month sick note ran out for work 3 weeks after her 57th Birthday I need a hug I want a hug I watched her slip away. I have days like today when I want to cry but it won't come out why won't it come out let me cry I want to feel it wont let me feel. I work in a pharmacy I threw myself back into work ive worked through covid ive lost a close work colleague to covid I just want to feel. I just needed somewhere to write this down. Thank you for reading
Hi , I am sorry to hear about your Mum and how you are feeling, I hope writing things down has helped a little. You mentioned wanting to cry but it not coming out, that’s how I have felt at times, and found that listening to music helped. My Mum passed away and 3 months later while still missing her I was diagnosed with cancer and I seemed to feel numb, emotionless, I suppose it was a way of coping but one that I wanted to move forward from. I seemed to be grieving for myself as well as her.
You mentioned that you just needed to write it down, so I’m not sure if you were seeking a reply but I wanted to say take care of yourself, the Macmillan site will be off line and then in read only mode while an upgrade is taking place, you have probably seen the email about the dates and times but I just wanted to say that while the members here won’t be able to offer any support during those times Macmillan has said
“If you need to talk to someone while the Online Community platform isn’t available, please remember the Support Line is here for you. You can contact the Support Line over email, live webchat or call 0808 808 00 00 7 days a week between 8am-8pm.”
Take care
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