Dealing with grief and anticipated grief at the same time

FormerMember
FormerMember
  • 6 replies
  • 8 subscribers
  • 5244 views

Hi

Not sure if posting in the right group or not really. 

On the 5th April this year by dad passed away from lung cancer, we got a diagnosis of termini cancer in November 2018 although it wasn't lung then.

Mum is in her last few weeks (possibly months but I think that is being hopeful), also diagnosed this year with terminal lung cancer.

The day dad died was the day mum came home with the intentions of seeing her days out at home. She is now not able to move from bed due to the pain, sleepy on the morphine she is on and (this will sound wrong) but mentally with it (dad wasn't and boy was that easier).

I know I am not really starting to deal with dad's death as it has all been about keeping mum safe and at home. We are getting no help from our local community teams, both palliative care teams say they are full capacity and cause mum's not end of life yet (only because she is eating and drinking which is only cause the carer is holding the drink and feeding her). So many different teams have said about getting a hospital bed but I don't think anyone is committed to taking the lead. On top of this all there are massive changes in my job, people have been trying to stab me in the back where I am not at work all the time and someone I thought was a close friend of 6 and half years, who was my manager at work now wants nothing to do with me but is meeting the people in work she always said to me and someone else she couldn't stand them.

The hospital mum and dad come under has sent me a leaflet for wessex cancer support. They have o e Thursday a month I could go to for help. I have contacted Cruise bereavement who haven't come back. I have emailed Maggies having seen it on her and there is no local center and they aren't taking anyone on online till September. 

I have no idea what to do but I know I am done and if I didn't wake up tomorrow morning it wouldn't have an issue. I am already in the highest dose I can have on my current antidepressants, my doctor is weary of changing them incase things happen when I am in between levels in me..

Mum paid her taxes when she worked, dad paid his and fought for his country, I pay more than my fair share in taxes yet it feels like there is no on to help either me or my mum and I feel I am failing mum.. 

  • FormerMember
    FormerMember

    I just want to say how amazing you are and what a difference I’m sure you have made to your parents. First things first; it is unacceptable that your mum has no palliative support and I would explain the urgency of your Mum’s situation to your local MP or doctor as this will no doubt speed up the situation. The work situation sounds awful but try your hardest to be neutral and  leave the backstabbers to it, they can’t be trusted and are not worth bothering being upset over. I know it’s hard, but perhaps in time you can job hunt and find a way out of a toxic situation. 

    You can can do this, please know you are making a huge difference. Lean on us and family or friends, and don’t let nasty people drag you down x

  • FormerMember
    FormerMember in reply to FormerMember

    I just wanted to add that I know this must feel like the test of your life but you are absolutely not done. We are all here for you if you need to talk x

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you Hope_29 since writing that mum suddenly passed away yesterday morning, we didn't even get chance to say goodbye etc however she was at home, with the carer and neighbour which is what she wanted and that is all that matters.

    Xx

  • FormerMember
    FormerMember in reply to FormerMember

    I’m so sorry. I’m sure your Mum felt loved and that is what matters. Please keep in touch with us here if you need to x

  • I am so so sorry to read this. I can’t even begin to comprehend how you must be feeling right now. Like a horrific nightmare that you’re hoping to wake up from I bet. Take comfort from knowing they’re both now free from pain and suffering and are together again. Both your parents will know what you’ve done for them over this horrendous time. Your dad just came back to get her and they slipped away together.

    Sod the backstabbers!! I hope they’re feeling ashamed of themselves now. You soon find out who your true friends are in times like these, don’t you?!

    xx

  • FormerMember
    FormerMember in reply to Sbt123

    Tbh sbt123 at the beginning of the week I felt like just shutting myself away in a room away from anyone then I don't need to worry about who to trust. I wish I could be less trusting and maybe one day I will.

    I am not sure how I am feeling, tbh I am not sure how I keep getting up every day. The shock of everything is starting to hit now that I have time to stop. Not helped by MIL stating the obvious when she said to me last night at least I have no more parents to lose... 

    I am glad they aren't in pain any more and I know it will get easier and in a way is already as I can now do things without worrying about shopping etc for mum and I know I need to not feel guilty on it. Just wish it was as easy to do as I say