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we have just had a call from the christie, to say tim starts his radiotherapy tomorrow, that was quick as i only got him back yesterday...lol so early one tomorrow transport is coming at 8.50 so il have to get organised to night, im taking tim out in his chair in about an hour god help him .....lol
speak soon
sandra & tim...xxxxxxxxxx
Fingers, toes etc etc crossed for tomorrow see onc hopefully blood count fine so can go ahead and have my final FEC100 on Friday. Am going to ask about Docetaxel cause that follows next, feeling anxious cause back to square one with not knowing how its going to affect me!
Feeling well, strong and positive, bring it on!!!!!!!!!!!!!!!
I'm fuming I just wrote all this out and then lost it!! AAAARRGGHHH!!!!
Anyway, again!!
Yesterday I went back to see Mr Sharma at St George's. He was one of the two surgeons who operated to remove my last tumour 3 weeks ago. The wound has healed fantastic, I'm so pleased with it its so neat! I'll show it on here when I can work out how to publish photos in this blog.
The lab results confirmed that it was melanoma, no surprises there as I'd already been told it had doubled in...
An update since we got back from the states nearly 2 months ago. We've settled down again and believe it or not, apart from my very close friends I don't miss it at all. In fact I would go as far to say I am loving life right now. Today at 2pm I am having my first haircut since losing it last July. I'm going to have it pixie, bleached blonde, and then tomorrow I have my first real check up since finishing all the treatment. I am quite realistic and realise that whatever will be will. I feel...
Yesterday was an awful day for both Sal and myself. She spent the whole day almost doubled over in pain from the reaction to ciprofloxicin. She couldn't keep anything down and even water triggered an desperate dash to the loo!
Needless to say, I was on the lookout for her temperature. She was in day 6 of chemo, just when her white counts are at their lowest, so she is at great risk of dangerous infection so I was taking her temperature regularly. I noticed that it was higher later in the day...
…..for being quiet and grumpy!. Bad Fairies aren’t known for being quiet so sometimes we have to put a bit of practise in and that‘s what I‘ve been doing. The past three weeks have been very busy in the Bad Fairy house, school holidays, meeting up with an old school friend, parents visiting and parents staying. All very lovely and thoroughly enjoyable but here’s the rub. I hate admitted that my energy levels aren’t what they were. Giving in to feeling tired isn’t something...
hooray my tim is home, we have decided were gonna switch off all the phones and enjoy a calm peaceful night just the two of us.....im on cloud 9 and hes so happy to be home.....still need to get my L plates...LOL, love and gentle((((hugs)))) to u all
sandra......xxx
Ciprofloxacin is a broad spectrum antibiotic. Sal started taking it yeterday and was meant to be taking it for 5 days while her white count is low. Unfortuately she has had a bad reaction to it. She has severe, double up, stomach pain along with the runs and vomiting. The doc has come out to her and said there isn't a lot that can be done until it is out of her system and has prescribed levofloxacin as an alternative. It is in the same class of drugs but is more tolerated.
So, she is now upstairs...
I have to get this off my chest, hoping it will help me. I have been on here for some time now and have always felt positive. All through my treatment I have remained well and have amazed people with how I look and act. This past month I have found that I have plummeted into the depths of dispair and each morning I wake up I feel an overwhelming saddness envelope me.
Let me tell you my story and hopefully by writing it down I may feel better.
My nightmare began in April 2002 when my darling husband...
http://www.cancerhelp.org.uk/trials/a-trial-looking-at-bevacizumab-after-surgery-for-melanoma-skin-cancer?SearchQuery=and(content:string("bevacizumab",mode="simpleall"))and(crdtype:string("ClinicalTrial"))and(crtrialstatus:string("Open"))&AdvancedSearchFormType=research_and_trials_adv_search_form&OffsetValue=7
to do or not to do....that is the debate
pros and cons from experience please
thanks
peter
