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We lost our dear mum in the early hours of this morning. Almost 12 months after being diagnosed. She had all of her family round her and she eventually slipped away. I know she is with the angels now and that is some comfort at this time. This site has been a great source of support for me.
Take care everyonexxx
I've just read through The Bad Fairy's blog and, as I happen to be married to said fairy, I thought I should give another angle from the 'staff' at home (Please don't tell her I was very impressed otherwise I might need to buy her new, slightly larger, hats!). I understand now that a number of users join in and read posts as family and friends of cancer patients to gain an insight into what happens in this complicated world so I hope this blog might prove to be just as relevant but...
The appointment at the Haematology clinic went pretty much as expected. Bert is to have no further treatment. No more Chemo. No Chemo tablets. From here on is it will be palliative care only. Maintanence treatment will include Prophylactic antibiotics, anti fungals and antivirals. Blood Transfusions, Platelet transfusions when required.
We are still in shock I feel like someone looking in from the outside and it is all just a dream.
We have been given all the Hospice information Bert has had a...
...... and I wasn't ready to part company with them!
No, I wasn't about to join the local rugby team, not even the ladies one! This is the story of the hospital's one and only attempt to perform an endoscopy on me. Somehow I don't think they'll bother trying again!!
It has to be said the hospital porter was lovely, very chatty and cheerful as we whizzed along the corridors. On arrival in the sparkling new endoscopy suite the welcoming committee were nice and cheerful too. Lots...
…... Or face the wrath of the Bad Fairy!! Yes it’s December and that means Christmas (no grumbling at the back there please!). Wednesday saw me being chauffeured to the hospital, nothing exciting just some Bonio meds (Bisphosphonates) and I couldn’t believe how many houses had their Christmas trees set up in their front windows. Now call me a scrooge if you must but isn't it a bit early? Particularly when you think of the disastrous consequences of having a Christmas tree...
….about cancer. How do we do it? It’s hard enough sometimes talking to adults and explaining things but children are a completely different kettle of fish. This isn’t a text book way of talking to children when a parent has cancer, this is just our experience. Master and Miss Bad Fairy are eight and seven. We started off explaining that things had gone wrong in my liver, as that was the obvious bit, what with me being all yellow. Children are little sponges and before long...
..... and I didn't touch it, honest!!
It would never have won any prizes or been held up as an example of perfection but I was rather attached to it. Maybe I should have paid it more attention. Lavished some time and effort to lift its self esteem. To be honest it did always look a bit like the poor cousin and never as grand or imposing as its near neighbours.
Anyway it's gone now, superglue and bodge tape won't make any difference. Yes, today I said goodbye to my little toe nail. It's a good...
.... lucky to have been diagnosed with secondary cancer?
We are forever reminded of the uncertainty of life and the fact that life can end unexpectedly at any age. I've had an advanced warning. That advanced warning has prompted me to look at my life and appreciate all of the good things in it, something I may not have had the opportunity to do had I plodded on assuming that I'd live for a long time. So I am lucky!
Lucky to have a wonderful and gorgeous husband. The fact he leaves his socks...
.... always look for the positives!!
It seems I've taught my children well. When my long, thick and curly (some would say unruly) dark brown hair started parting company with my head we took control. Can you imagine the twinkle in the eyes of a pair of primary age children being told they can cut Mum's hair? Typical children they soon got bored but then I did say it was thick and it was hard work! Mr Bad Fairy came to the rescue when it was suitably shorn with his hair clippers and razor. Definitely...
hey everyone,
well yetserday i had my 3rd fec chemo, that is halfway, it feels like a milestone on this long tough road, i was feeling a bit sick when i went yesterday not sure if i had a tummy bug, anyway i had asked for stronger anti sicknes as i had vomitted the first night both times before, what they didnt tell me was i had to take one and then wait an hour before chemo, ah well had to be done, the nurse informed me that the tablets cost 74 quid for 3 tablets! well i thought as cheryl cole...
