Blogs

Latest blog updates

• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  W J 9 hours ago
• To Hop-on or Hop-off is the question?

  Mr U 22 hours ago
• Cool Cap Relief

  TerryB 1 day ago
• Living with Desdemona

  Desdemona 2 days ago
• Today my coffee tastes like Christmas in Costa Rica

  Beesuit 3 days ago
• One Step At A Time

  Phild26 3 days ago
• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Dylan - Online Community Team 5 days ago
• Multiple Myeloma

  Tess123 15 days ago
• Mumofcancer

  Mumofcancer 22 days ago
• Cycle 19 and not working anymore

  Emotions 24 days ago

Latest blog posts

• Journaling my cancer jouney

  Journaling my cancer journey - my next poem: The Paranoia Battle

  Hello Everyone,   I hope this post finds everyone doing OK / getting through it?  My apologies for my tardiness in getting this next poem out to you but I’ve had another stay in hospital with my 2nd infection since I started on my ste...

  Twin Castor57b5d5 9 months ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Cycles

  I keep reading people stop their cycles of chemo after 6 months. I’ve been on mine since I started. Is that normal. I had tremazadol and that didn’t work at all. They then started me on lomustine. I’ve been on that ever since. They ...

  W J 9 months ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Checking in

  Nov 2025 - so I’ve been having blood test and everything has been down for the last few months; so no chemo for me. All but my platelets have returned to normal, and I’ve found the lumps on my left hip. I’ll get these checked by my ...

  W J 9 months ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  White cells

  Nov 2025 - so I’ve been having blood test and everything has been down for the last few months; so no chemo for me. All but my white cells have but returned to normal, and I’ve found the lumps on m left hip. I’ll get these checked b...

  W J 9 months ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  My diagnoses is not hd

  Ive tried to delete the hd (homozygous deletion) but with no luck. I’ve emailed twice but don’t want to mislead. Mine is a non deleted

  W J 9 months ago
• Kidney Not

  Four Years On

  Today is 24th November 2025.  Four years since my urology appointment informing me I had incurable metastatic kidney cancer. I don’t feel like I have incurable cancer any more and it’s not a worry.  It does inconvenience me.&nbs...

  Mmum 9 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 219: Another Day in Bed.

  Post 219: Another Day in Bed. There’s nothing to say that I didn’t already say yesterday — I’m in bed and pretty much stuck here. The pain is now more focused on certain muscles and joints mostly on the left, sitting anywher...

  Mr U 9 months ago
• Distracting myself, hopefully!

  No relaxing today

  I'd been hoping for a relaxing Sunday but it soon became clear that there was little chance of that.  First H needed his hair cut.  Then I thought I had better tackle my fringe.  Next was the laundry and bed linen changing.&nb...

  Margaret853 9 months ago
• Hpv and no immune system

  Help

  I have no immune system have just been told iam high risk hpv with normal cells but havnt had any it her information and there isn't a lot on Google can anyone else shed some light on this for me 

  381 mefe5318 9 months ago
• (Cancer) Garden journey day by day

  Blue sky inspiration

  Look up, what is the sky today telling you? It's bright, it's blue (the mood-lifting one, not "the blues"), it's brilliant and inspirational. First, a vapour trail created what I imagined as an ethereal centipede, it's little legs carrying it upward...

  WalkerGirl 9 months ago