Nickodemus Journey

  • Feeling much better - day 16 post rchop

    FormerMember
    FormerMember

    So - now ok after weekend scare neutropenia apparently.  Maybe a urinary tract infection- results awaited

    But feeling good yesterday and today: trip out in Morgan today and even thought about cleaning it - shows I'm feeling better

    That said - on penicillin bombs 700mg 3 times a day until Saturday

    Still drinking vast quantities of water to avoid repetition.  I lose about 5 pounds each night (sweats) but rehaik…

  • Infection interruption

    FormerMember
    FormerMember

    Oh dear - I see why I was tired

    Saturday morning developed a temperature 38 degrees and called into hospital - here I am 24 hours later full of antibiotic via drip and non stop saline and much perkier! Temp back to normal 

    Doc gave a stomach injection of white blood cells (?) and another due shortly

    Staying in another night to verify ok to go home

    A salutary warning to keep tabs on your temperature or things…

  • Tired on day 10

    FormerMember
    FormerMember

    10 days since rchop - after good day yesterday - very tired today.

    Blood pressure seems low so checked in with nurse explaining tired etc

    Also seem to have lost half a stone in about a week!  Have been eating (hard work) maybe it's the lymphoma melting!!

    Resting now and drinking buckets of water so up and down to the loo day and night adding to tiredness

    Otherwise ok - bowels fairly regular with laxido

  • 7 days post rchop - tired

    FormerMember
    FormerMember

    Updated at one week from first rchop chemo

    Bowels still ok with help from laxido

    No nausea

    Quite tired now as evening approaches 

    Not wanting to do too much - but otherwise pretty good 

  • Day 5 post rchop

    FormerMember
    FormerMember

    Ok - first day no steroids - not too tired so far - been singing 90 mins at charity do - so expecting some tiredness. Napped pre lunch over Observer 

    Biotene a saliva miracle has done well to sort out dry mouth and give food some flavour and help appetite 

    Bowels working daily with help of Lacido once a day pm

    Hoping Monday is not a downer