Paraganglioma

  • i am a medical trial lol

    FormerMember
    FormerMember

    meant to put this in last blog post, i seem to be some what of a medical trail.  as the type of cancer i have is so rare there aren't enoguh people with it for any medical trials to have been carried out before.  

    therefore this means all they know about treating me is roughly which type of chemotherapy to try. 

    they have said all they are aiming for is to maintain its size,  if lucky shrink it, but they have made…

  • moved in to acceptance!!

    FormerMember
    FormerMember

    So have just noticed how long it has been since i last blogged, and in that space of time quite a lot seems to have happened!!

    i think i have moved in to the realm of acceptance, i am strangely happier in my self and with others than i have been for a good 6 months, what is even stranger is that i am happier now than before i was told the cancer had returned,  all i can put this down to is that there is no longer any…

  • bit more positive

    FormerMember
    FormerMember

    Had a long hard week last week, Had MIBG scan on tue and wed, and CT scan on thur,  All went ok, just tiring.

    Don't seem to have good days on wednesdays though.  Last wed was not a good day.  I had thought i was seeing the work councillor and then discovered that my boss had made a mess when arranging the appointments, she had arranged a group session for when i was out having my scan, but hadn't told either myself…

  • waiting

    FormerMember
    FormerMember

    So today seems better than last couple, but will see how it goes. 

    had a really bad day on wednesday. been waiting to crack knew it was coming, and it happened whilst getting a sales call on my mobile.  the guy must have realised i was loosing it, as ended the call quickly.  i just dropped the phone and burst into tears.  much to the dogs dismay as they both tried to help by sitting on me and licking my face. as least they…

  • worried

    FormerMember
    FormerMember

    So just getting the hang of this whole blog thing. 

    Am finding it much easier to work out what i am feeling by writing it down, everyone keeps wanting me to talk and i don't have any words that they are looking for.

    i had a lump removed from my abdomen last june which they discovered was paraganglioma, after a octreotide scan in october they decided it had all been removed and everything was great.  had a follow up…