think ink!

2 minute read time.
First off, thank you guys SO much for the support! I wasn't sure if I should even be here since they haven't figured it out. Since my last post a lot has happened. to sum it all up I had a radiologist tell me that it wasn't lymphoma or leukemia and then my doc said it was still a possibility but maybe not as big. Then I was told that I have a tiny cystlike thing in my thyroid that they're going to biopsy soon as well as my. Swollen node. Then I had a consult with my surgeon for the lymph node and they did a detailed exam and he found what looks like skin cancer on my back. Everyone is trying to figure it out because I'm such a mystery. My doctor looked at me baffled yesterday and told me I was completely healthy except for the fact that I'm not. The surgeon said he thinks the lymph node is a strange reaction to a tattoo I got six months before and is just full of ink but the other surgeon didn't look so sure. Then he told me that his worst case scenario was melanoma and all he would say is that if so then its bad because its already in the lymph system. He said that was a 1 in 30 chance but if not then I'm back to square one with what is really wrong that's causing the seizures and stuff. My boyfriend started his new job which means I've had to go to my last two appts alone. I still make everyone laugh and I still get a kick out of being a med school science project but I feel so much smaller in that room without him. He is so upset that he can't be there but I got fired from my waitressing job within a week of telling them I was sick for something stupid and I've been on leave from my gas station job for a few months now because its so physically stressful. I'm used to pushing myself to the limits but my limits are a lot harder to push now and I hate having seizures at work. I'm still a nanny and I'm trying to get a receptionist job at a hospital(fingers crossed!). Then I'll just do that and the nanny thing. I'm still upbeat and everything but the past two weeks have been a little rough so I'm just a little worn down. Still have an amazing life and no depression here. So many needles. Big scary needles. They almost did one today without collin their and I almost cried. I just can't wait for an answer. Whatever it is I'll deal with it and if its fatal I'll start my bucket list and forget the hospitals lol. If its melanoma I'm probably looking at stage 3. I have a lot to do no matter how much time I have to get it done. Don't get me wrong. I'm not saying I'm dying but I AM preparing myself for anything so the worst won't be so bad and the best will be a relief. Think ink! Lol
Anonymous
  • The 'not knowing' is the hardest aspect of this disease. Once you have a proper diagnosis and a treatment plan in place you will feel more in control.

    KateG

  • FormerMember
    FormerMember

    Yeah, I feel silly for being on this site sometimes because they don't even know if it is but everyone seems to think my symptoms point to some sort of cancer. Even just being told you might have it throws you for a loop and waiting for answers makes me antsy. I'm less tired today so I'm all perky again. I'm about to go run which makes me super happy lol. Maybe I can just run off the anxiety. Working with kids helps me stay upbeat even when I'm anxious.