26.7.10
Mum went back to see the oncologist today. All fired up to restart Tarceva, appointment booked tomorrow to see smoking cessation nurse..........They do not think she is well enough to restart the drug.
It is difficult because I was not there today my sister took mum. Apparently they are worried because mum is having regular loose stools, quite bad pain in chest and stomach.
Mum has now been started on Oramorph…
Well what a lovely break it really was just what we all needed. The weather, food and accommodation were fantastic. There were tears. there was laughter and most importantly there were some wonderful memories created. Mum was fairly well, she had one of her, what we call 'turns'. We call them this as they have not got to the bottom of what they are. They think they could be mini strokes but we don't really know. Apart from…
11.7.10
Mum saw the oncologist on Monday, it was another terrible experience at the hospital. There were no notes, no reports from the recent investigations etc. The oncologist relied on information given by my sister and I. I was appalled by the systems failure which we have experienced over and over.
The positive thing is that she thinks mum can give the Tarceva another go if she wishes. Mum is going to take some time…
I do not know where to start with this one, my head is still in a spin. The good news is we took mum home yesterday.
I had a phone call from the hospital yesterday lunch time saying that they were sorry but there had been a mistake on mums histopathology report. It was recorded that mum had small cell lung cancer and that the other tumour was non small cell.
Mums lung cancer is non small cell which meant that the one…
8.7.10
Don't think I have slept much if at all. In fact don't think there has been much sleep for the last week. I can not seem to turn my brain off for a second and I know that I can not sustain this without burning myself out and I can not afford to do that.
Mum tried Oramorph last night for the first time, she had been getting chest pain on top of her other pain so I decided to stay at the hospital to check…
