11.7.10
Mum saw the oncologist on Monday, it was another terrible experience at the hospital. There were no notes, no reports from the recent investigations etc. The oncologist relied on information given by my sister and I. I was appalled by the systems failure which we have experienced over and over.
The positive thing is that she thinks mum can give the Tarceva another go if she wishes. Mum is going to take some time to think about this and will decide when she next sees the oncologist on 26.7.10
Mum can not have 2nd line chemo for the metastases as her liver would not cope with it so Tarceva is her only option. They are reviewing all of the other tablets mum is on as we said we were concerned by how many she was taking and the stress this would also place on her liver. There are 3 different tablets for her blood pressure alone. The oncologist said that many of the tablets were intended as long term preventative treatment and in her words "we are not managing the long term but the short term so there is little benefit of the tablets"
The oncologist was pleased we have booked a holiday and said that it was important that we went. I felt that she said a lot without saying much if that makes sense?..
Mum knows that time is no longer on her side, she is very down especially today. I phoned earlier and she was crying, I wish there was more I could do. I will go and see her later and we will discuss the holiday and try to help her look forward to this. I can not imagine how scared she is, I know I am scared.
How precious all the things we take for granted are when you suddenly are facing what mum is facing. To know that she will not see her grandchildren grow up, that the youngest especially will not have any memory of mum other than through us.
It has been 20 years since I last went on holiday with my mum, they were such care free days. I have wonderful memories of those times and hope that this weekend we can create some more wonderful memories for us all.
Love and strength to you all xx
