Facing the future: Together

  • "Stay Focused" 2021

    It’s hard to believe that it has been over one month since we last updated our blog, it certainly is overdue.

    Christmas was spent with our second eldest daughter, Dal, chose his food carefully, he had to take his time as he was concerned that he would choke at the dinner table, he felt more conscious whilst eating and I felt a little apprehensive. Dal reached for his fizzy drink a few times and I noticed myself…

  • April 2024 The Trial Continues.

    The spring cold came and went, and another cold jumped in its place, this time things were different, Dal had been feeling quite unwell, and he had also started to lose his hair, something that seems to have surprised the oncologist, a rare side effect of this trial treatment we were informed. 

    Initially the hair was just coming out in small strands, but one evening after his shower I found him standing in front of the…

  • Recent Oncology Visit - October 2023

    A few weeks ago Dal contracted Covid, he was quite ill for a few days but in his normally way, he battled through and I am pleased to say he has recovered well. 

    In addition Dal has, on occasion had quite severe stomach upsets, there is no known reason, it is something we are trying to find a link for, but overall he has remained very well. 

    At the beginning of this month Dal had a face to face appointment with his oncologist…

  • January 2024 - OC on the move (Edited)(Again)

    Since October last year, Dal has missed 3 immuno treatments, one each month, 1 planned and 2 unexpected...

    October there were particles in one of the treatments, so it was unable to be given, and there was no back up supply available,  November, we had a holiday, which was planned and treatment would have to be missed to facilitate this, and then December, a strange scenario where Dal went and had his bloods done just…

  • February, new start, new regime

    Yesterday was the day for signing the consent forms at the New Hospital, still London based, but a whole new set of buildings to learn how to get around. 

    Not a great deal to report as today will be ECG, CT, Echo and Bloods and soon after that will be the Biopsy, then we wait, we see whether Dal is still HER2 positive and if so, what arm of the trial he will be on...

    I admit to being slightly anxious, and to seeing Dal…