Community News - Macmillan Online Community

What’s it all for anyway?

There are certain events in life that can really make you question the meaning of it all. Why do we fight so hard to go swimming in one direction just to have the tide change and drop us in waters we never planned for, miles away from where we thought we were going. The fear caused by uncertainty and the unknown can be powerful and paralysing, but that’s not necessarily the end of the story. “ in my times of uncertainty this community has been a saving grace for me. I want you to know you are not alone.” – BeeWise02 - original post Image description: a vast body of water, vibrant with colours created by the sun behind clouds. Often those dealing with the most can be the most inspiring. The strength and depth of character displayed by those affected by cancer, in times of uncertainty…

Tom C - Macmillan
Food unites us all.

During this time of crisis, it may be hard to see the positives, but one thing I’ve noticed is that more people seem to be enjoying home cooking. Whether you’re lucky enough to be sitting down more regularly as a family together; virtually sharing a special meal with a loved one via video chat; or simply chatting with other members on the Community, food is something that unites us all. Community members have been chatting in this thread about baking, whether a distraction or necessity, bread is often a popular choice. According to Community member ‘Shazam’, kneading is good exercise for the lymphatic system!However, we understand that when you have cancer, it can affect your relationship with food. Member Hattykat suggests chemo can put you off your favourite foods: "I gave up coffee…

Steph - Online Community Team
Are you new here? Tips and guidance from the Community

Welcome to the Online Community, we hope you find it to be a place of comfort and support. You might be feeling worried, upset, happy or just a bit strange right now, but the Community is here for you 24/7 no matter what you are going through. Our New to the Community group is a great place to start here on the site, and we’ve collated some great tips from our members which have been posted in the group to help you make the most of the Online Community. Everyone who is affected by cancer has a different experience, but the Community is here to show that you are not alone. Update your profile “When you feel up to it, it would be useful if [you] could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar…

Eliza - Macmillan
Sharing support - acts of kindness in and around the Community

The sun is shining in many places across the UK today and similarly, we’re in the mood for some positivity. Stories of kindness and support have been shining a light in the Community and across social media recently, and we’ve collated a few here to brighten your day. Why not post your own story of helping others or others helping you, community spirit or how you’re staying positive in the comments below? "Keep talking" Image text: Can I recommend the @macmillancancer online community if you, like me, are currently affected by cancer in some way? It’s been a brilliant way to feel less isolated for me and that’s even more important considering the current situation. Keep talking. community.macmillan.org.uk Everyone on the Community has the power to make a positive and meaningful impact…

Eliza - Macmillan
'I keep reminding myself that one step at a time is enough' - My journey through breast cancer in verse and word - Vol 3

Today here on the Community News we wanted to share with you the third volume of our series ‘My journey through breast cancer in verse and word’ by Amanda-Jayne. Amanda-Jayne was diagnosed with breast cancer in June 2019 and used poetry and journaling to diarise her experience throughout. Amanda-Jayne has very kindly sent through her poetry and writing to us here and we are really pleased to be bringing you this series. In her writing Amanda-Jayne talks openly about her thoughts and feelings through diagnosis and treatment. If you missed the last volume of Amanda-Jayne’s blog, click here to catch up. ‘….I am told it helps to put all your worries and anxieties onto paper, that way they are out of your head and you can sleep better, writing them, down won’t solve your worries but it can help…

Former Member
Sick of all the bad news? Our members have a plan!

As the dust starts to settle after the lockdown announcement, we all begin to face the reality of a few weeks, maybe even months, at home. Everybody’s situation is different, the challenges of living alone are very different to those of large families suddenly locked down together. One thing that's undeniable though is that those affected by cancer are certainly impacted more than most by the coronavirus. It’s important now more than ever that we pull together as a Community. The not so breaking news we’re delivering today … is that this is already happening! Check out just some of the many examples below. Our daily Boris Break Tit-Bits - A space for sharing your feelings and staying connected. Lockdown......don't panic...... Lacomtekp - Lovely post by one of our members living in…

Tom C - Macmillan
Adapting to change - baking a difference

Many of us are forced into learning to adapt when there's a cancer diagnosis. How do you deal with change? In the current pandemic, many of us are experiencing disruption to our normal lives. Whether it’s having the kids at home or things missing off our shopping lists, we’re all having to adapt in some way. How we deal with this change can really affect our well-being. You all help make the Community a safe and supportive space where we can all share our worries, but also a positive place where we can share hints and tips to get through this together. Today, I’ll be sharing some of my tips and recipes for making the most of cupboard items when ready-made products, or crucial ingredients aren’t available! Quick Loaf Did you know, you can make a delicious loaf of bread, without…

Ellen - Macmillan
'I am told it helps to put all your worries and anxieties onto paper, that way they are out of your head' - My journey through Breast cancer in verse and word - Vol 2

With all the uncertainty of late, we felt it was important for us here on the Community News Blog to keep going as normal where we can. So today we wanted to share with you the second volume of our new series ‘My journey through breast cancer in verse and word’ by Amanda-Jayne. Amanda-Jayne was diagnosed with Breast cancer in June 2019 and used poetry and journaling to diarise her experience throughout. Amanda-Jayne has very kindly sent through her poetry and writing to us here and we are going to be sharing it with you over the next few weeks. If you missed the first volume of Amanda-Jayne’s blog, click here to read it 20th June 2019 First day back at work since diagnosis, everyone was lovely and supportive, gave me flowers and told me to focus on myself not work. Feel very tearful today…

Former Member
Coronavirus (COVID-19) - Staying safe and looking after each other

Hi everyone, Blankets, cups of tea and biscuits are in order in this uncertain and perhaps stressful month. Discussions about coronavirus (COVID-19) are everywhere on the news and here in the Community, so we wanted to collate some key tips to help you navigate the coming weeks and to stay safe. The government has issued this advice for those who are particularly vulnerable due to their health. This includes advice for carers, advice on hospital or GP appointments and mental wellbeing. This is being updated regularly and we would recommend checking this on a daily basis if you are worried about taking the right steps to stay safe. Macmillan have also provided some information and answered some key questions around cancer and coronavirus (COVID-19) . Some of us may be experiencing confusion…

Eliza - Macmillan
'Talking Cancer' - Macmillan's new podcast

In today’s news blog, we hear from Katie who works in our media team here at Macmillan. She’s writing today to tell our Community all about a new podcast, ‘Talking Cancer’, that’s been created with the aims to share experiences and hear from people affected by cancer. Hi everyone! We wanted to be the first to tell you that the first two episodes of ‘Talking Cancer’, the new national Macmillan podcast, are now downloadable on all main podcasting platforms, including Apple Podcasts and Spotify Podcasts. Tune in to hear heart-warming, intimate conversations between Radio DJ and Macmillan supporter Emma B and the people living with, or affected by, cancer who have taken the time to share their stories about one of the toughest times of their lives. Emma also has a chat with Macmillan professional…

Ellen - Macmillan
'Love is the greatest gift you can receive and give, it is priceless' (ellie68) - Wellbeing roundup: February

It seems like February has come around at lightning speed, and despite the dramatic weather of the last few weeks there do seem to me small hopeful signs of spring in the air. Today we have put together some amazing wellbeing tips and expressive thoughts that we have collected from the Community. So why not put the kettle on, settle down on the sofa and take a moment to look through our favourite wellbeing tips of the moment? ‘Imagine being in a room where you cannot reach the door, after each session of Chemotherapy that door gets closer, until in the. end you have opened that door and gone out of that room.' - 'My Motto throughout this journey: One step at a time, One Day at a time. Deal with whatever that day throws at you and move on.' - BrandyGirl 'Love is the greatest gift you can…

Former Member
'The outcome is still unknown but I am glad that I don't have to face this ordeal all alone' - My journey through Breast cancer in verse and word - Vol 1

Today we are really pleased to welcome a new guest blogger for the Community News, Amanda-Jayne. Amanda-Jayne was diagnosed with Breast cancer in June 2019 and used poetry and journaling to diarise her experience throughout. Amanda-Jayne has very kindly sent through her poetry and writing to us here and we are going to be sharing it with you over the next few weeks. So, here is volume one of Amanda- Jayne’s journey through breast cancer in verse and word. Amanda-Jayne with her husband Tristan, and parents in law, Sharron and David. Little Tinker Just a little while ago tinker came to stay, Hope she doesn’t get comfy Wish she would go away. She sits there just beneath my skin Knows there’s nothing I can do, 'She can’t hide from the doctors For her they’ll see right…

Former Member

Awake and up all night?

We know that cancer can sometimes cause sleepless nights. Join our Cancer Chat forum for some company here in the 'Awake and up all night' thread.

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