Community News - Macmillan Online Community

Hair care, hair loss and styling tips from the Community

Are you having treatment and worried about losing your hair? Or do you have questions about styling hair changes? This blog includes some recent experiences and suggestions from Community members across our different groups. There are some great support resources and information to help you cope with hair loss, and we will include some of these towards the end of the blog. We know that hearing the experiences of others can be invaluable when learning how to manage side effects like hair loss, hair styling and maintenance, so we hope you will find the following helpful. Hair loss Coming to the forums to ask questions about hair loss can help you manage and process any hair loss side effects of treatment: “After chemotherapy, when the hair starts growing back, has anyone had experience…

Megan- Online Community Team
The Cancer Experience Forums – finding peer support to match your situation

What’s in a name? The meaning of ‘Cancer Experiences’ might not be as obvious as ‘Cancer Types’, but it’s a good way of summarising the wide variety of support groups you can find in this section. While the Cancer Types section helps members with a similar diagnosis to find and support one another, the groups in the Cancer Experiences section gathers people around the various situations and circumstances they might encounter when cancer impacts the life of themselves or a loved one. When you visit the Cancer Experiences section, you will find all of the support groups listed in alphabetical order. To help you discover which groups might be most relevant to you, this blog aims to organise the different support groups into a few common categories for you to browse. New members and general…

Matthew - Online Community Team
Diagnosed as a younger adult - support from the Online Community

In our recent blog ' Getting cancer at our age is such a shock - supporting adults in their 20's, 30's and 40's on the Online Community' we discussed how b eing diagnosed as a younger adult might mean you are more likely to need support with issues around relationships, fertility, family, money and work. In the first of the two part blog, we shared experiences related to fertility and family, with a focus on children and other dependants. In this second part of the blog, we are highlighting conversations on relationships, career and finances. Although many of these issues do affect people living with cancer at any age, this short blog series focuses on the experiences of members who have been diagnosed with cancer between the ages of 20-50. Many people describe finding it difficult to…

Steph - Online Community Team
“It’s their job to fight the cancer. Your job is to look after your body and soul and stay sane”: Insights from a Macmillan Online Community Champion

November is Mouth Cancer Awareness Month. A time to raise awareness and support for those affected by mouth cancers. We wanted to take the chance to highlight our Head and Neck Cancer Forum , where members can connect, share experiences, and find support from others who understand what they’re going through. In this blog, we’re sharing insights from MikeO . He joined the Community shortly after his diagnosis and now plays an important role as one of our Community Champions, helping our team keep the Head and Neck Cancer forum safe and supportive. When I got my first cancer diagnosis, in 2013, I found out fairly quickly that I was nothing special. Surgery (neck dissection), and radiotherapy (seven weeks) with a dash of chemo thrown in was a well-worn path. I was scared, and my family were…

Dylan - Online Community Team
Winter Picture Festival 2024

You may remember our Winter Picture Festival , where many of you have shared what winter looks like for you. Across the site, we know many of our members love sharing pictures from their walks, crafts, pets and paintings. The Winter Picture Festival is a celebration of your creativity, and an opportunity to bring joy to yourself and other members here on the Online Community. This year, we’ve decided to host another Winter Picture Festival! To join in with the Winter Picture Festival, all you need to do is upload a picture in the "Winter Picture Festival" discussion thread . We’ve set up a discussion thread in the “Express Yourself” forum . We’d love to see everyone getting involved using the “Reaction” buttons to let other members know you liked their picture! It would be lovely see…

Eliza -Online Community Team
"Getting cancer at our age is such a shock" - supporting adults in their 20's, 30's and 40's on the Online Community

In this first of a two-part blog, we will be investigating the support available from the Online Community when you are diagnosed as a younger adult. Being diagnosed in your 20's, 30's or 40's might mean you are more likely to need support with issues around relationships, fertility, family, money and work. In this blog, we will focus on shared experiences, fertility and family. You might be thinking about starting a family; have young children, teenagers, elderly parents or other dependants to care for. You can find the second part of the blog here which will feature conversations on relationships, career and finances. Talking about cancer, with people who understand Lots of people find it can help to have someone to talk to when you have been referred for tests for cancer, have recently…

Steph - Online Community Team
Black History Month – Support and Solidarity on the Online Community

October is Black History Month in the UK, which has been celebrated nationwide for over 30 years. The theme for this year is ‘Reclaiming narratives’, which is around sharing and recognising the contributions of Black individuals and their stories. As part of recognising and celebrating Black History Month, today we are sharing available support and Black people living with cancer who have shared their story on the Online Community. We’re also sharing reflections on Black History Month from Francesca Okosi, Macmillan’s Chief People & Culture Officer. The first Black History Month in the UK took place in 1987 and was arranged by Akyaaba Addai-Sebo, who came to the UK from Ghana as a refugee in 1984. 1987 marked the 150th anniversary of the abolition of slavery in the Caribbean. Black History…

Eliza -Online Community Team
Lung cancer support: Catching up with the Lung cancer forum

Next month is Lung Cancer Awareness Month . In this Community News Blog, we’re catching up with our Lung cancer forum . This supportive online group is for anyone affected by lung cancer, whether you’ve been diagnosed or are supporting a loved one. It’s a place to share your thoughts, worries, and experiences with people who understand what you're going through. Read on to see what discussions have taken place in our Lung cancer forum recently. "I'm so glad I've decided to join as I've been reading all your amazing posts of support." Community member – Lung cancer forum Coping with pain and treatment side effects For many, managing the physical pain of lung cancer can be overwhelming. The Lung cancer forum is a safe space where you can share your struggles and ask questions. A member…

Dylan - Online Community Team
Let's talk about early menopause

This Menopause Awareness Month, Boots and Macmillan Cancer Support are raising awareness of early menopause caused by cancer treatment, shining a light on the experience of those impacted and the support available through their partnership. This blog will share some support information and personal experiences of those from our Online Community. Macmillan & Boots- raising awareness together New analysis from Macmillan Cancer Support reveals that an estimated 60,000 women with cancer under 50 in the UK are struggling with hormone-related side-effects of cancer treatment such as early menopause [1] . “I finished treatment a year ago. Started menopause at 33 had a radical hysterectomy followed by chemo, radiotherapy and brachytherapy. I am on oestrogen pessary and patches. Any advice would…

Megan- Online Community Team
Cancer support, emotional support, and existing mental health needs - World Mental Health Day 2024

It’s ok to not be ok Thursday 10 October is World Mental Health Day 2024 , and we’d like to take this opportunity to remind you of the various mental health support options you can access if you or a loved one is impacted by a cancer diagnosis. It’s not uncommon to need some form of mental health support when a cancer diagnosis impacts the life of yourself or a loved one. Much like how the body’s muscles risk becoming strained under sustained exertion, experiencing a mental health difficulty is a very natural reaction to being under significant or sustained emotional stress. There is nothing at all to be ashamed of if you’re struggling. It’s common, it’s understandable, and it means that you are very much not alone! Accessing professional mental health support There are various ways…

Matthew - Online Community Team
Fall into the Online Community Autumn Quiz

We're starting to hear lots of mentions of autumn on the Community, with members talking about the nights drawing in, the colours of the trees and the leaves crunching under your feet. As many of you told us that you enjoyed the chance to relax and engage with light-hearted content, w e've created an autumn themed quiz for the Community today. Even if you're not feeling particularly positive about Autumn this year, you might find light-hearted distractions to be helpful. Have a go at 'conker'ing the quiz today and see how you get on! How to play the interactive quiz Use the voting buttons to choose your answer from the multiple choices shown. You are welcome to try all eight questions, or just a few. Once you have voted for your answer, you will be able to see how many others chose…

Steph - Online Community Team
Diagnostic testing for endometrial cancer- Jane’s story

Jane was treated for endometrial cancer in 2022 and became a Community Champion in 2023. She volunteers in the Womb (uterus) cancer forum and across the Online Community. Members often turn to Macmillan for support during the diagnostic process so Jane is sharing her personal experience undergoing diagnostic testing for endometrial cancer, which may provide some reassurance if you have concerning symptoms. Dealing with symptoms My first symptom was a heavy vaginal bleeding where I passed palm-sized clots. This caused some cramping and lightheadedness. I also felt some lower back pain. After general checks at A&E, I was seen by a gynaecologist who referred me for further testing, and I was put on the two-week cancer referral pathway. I was unhelpfully told that only ‘one in ten ladies…

Megan- Online Community Team