Community News - Macmillan Online Community

Cancer and fatigue. When do you start feeling less tired?

In our recent Community News Blog 'Awake and can't sleep? Some help with getting through the night' we addressed the issue of difficulty sleeping. We shared conversations from members around the Community around sleeplessness and getting support through the night. If this might be helpful to you, you can catch up with Eliza's blog here. You don't need to be experiencing difficulty sleeping to feel tired when you have cancer. Cancer itself and cancer treatment can both cause extreme tiredness, also known as 'fatigue'. We know that many of you come to the Community looking for support with managing your energy levels and improving your quality of life. In this Community News Blog, we'll be sharing some conversations, tips and support about fatigue shared around the site. Fatigue means feeling…

Steph - Online Community Team
Coping with the news you have incurable cancer

Finding out you have an incurable diagnosis can bring lots of different emotions. You may not feel your friends and family members can understand what you’re going through. You may not understand why you feel the way you feel. Jenna is one of our Information and Support Advisors on Macmillan’s Support Line . She is here to talk you through ways to understand and cope with your emotions and mental health. If you’ve been diagnosed with incurable cancer, it may help to talk. Please remember you can access support in our “Living with incurable cancer” group . This blog post is a bit longer than our other blog posts here on Community News. This is just to help you access all the information and support you may need in one place. Please feel you can read this at your own pace. To help you find…

Eliza -Online Community Team
Temporarily disabled email notifications

Hi everyone, Last week, we used a feature to send an email notification to all members to let them know about our update on the site upgrade . You may have seen the below email in your inbox: Unfortunately, due to a technical glitch, this email is being sent to users multiple times. Because of this, we have had to temporarily disable email notifications from the Community. This means users will not receive any email notifications from the Community. We have raised this as a critical issue and this is being looked into as a priority. We're really sorry for any inconvenience this has caused and we hope to have email notifications up and running shortly.

Ellen - Macmillan
Exercise and moving your body

Audrey who is a Macmillan Nurse Specialist on the Support Line, and in our Ask an Nurse section, has been speaking to people living with cancer about staying active and exercising. In today’s Community News Blog, Audrey is sharing information and some resources at the end to help you move your body. You will find the resource links at the bottom of the page. In a time where we are all trying to adjust to the constant changes that covid-19 is having on our lives, it is hard to keep up with it all. Having a cancer diagnosis and treatment during the covid-19 pandemic can be scary, lonely and life-altering. Trying to keep a routine and remain active can be even more difficult for people living with cancer. Knowing how best to stay safe and remain active is a common question cancer patients…

Megan- Online Community Team
'I keep reminding myself that one step at a time is enough' - My journey through breast cancer in verse and word - Vol 3

Today here on the Community News we wanted to share with you the third volume of our series ‘My journey through breast cancer in verse and word’ by Amanda-Jayne. Amanda-Jayne was diagnosed with breast cancer in June 2019 and used poetry and journaling to diarise her experience throughout. Amanda-Jayne has very kindly sent through her poetry and writing to us here and we are really pleased to be bringing you this series. In her writing Amanda-Jayne talks openly about her thoughts and feelings through diagnosis and treatment. If you missed the last volume of Amanda-Jayne’s blog, click here to catch up. ‘….I am told it helps to put all your worries and anxieties onto paper, that way they are out of your head and you can sleep better, writing them, down won’t solve your worries but it can help…

Former Member
All the details you need for the upcoming improvements

After the ‘ Look out for our improvements’ blog we posted last week, we wanted to give you some more information about our upcoming improvements and all the details you need to know about when these new features are going live. Once the improvements go live later this week, the following information in this blog should help show you how to make the most of some of the new exciting functions we are introducing. Don’t worry, we’ll also be updating our Help pages with some step by step guidance should you need a helping hand. When will these new improvements go live on the site? We are hoping that our improvements will be finished and ready for our members to use by 10pm on Thursday 10th of March 2022 . In order for us to bring you these improvements however, there will be some scheduled…

Megan- Online Community Team
Welcome back!

Welcome back to the Online Community! The new platform is now live, and we’re so happy to share it with you. So please take a look around! The site looks and feels different, but all your groups and content remain the same. When you log in for the first time, you will be prompted to reset your password for security purposes. Once you’ve reset your password, you’ll be able to log in, explore content and post as normal. If you’d like to find out more about why this upgrade has taken place, please take a look at our blog here . Highlights Bookmarks – you’ll now be able to “bookmark” and easily access specific discussion threads, groups or blogs Better search feature – searching for content on the site will now work more smoothly, helping you to get to the content you need quicker…

Eliza -Online Community Team
"Bladder cancer isn't a rare cancer, even though it's rarely talked about." - Bladder Cancer Awareness Month

t May marks Bladder Cancer Awareness Month, and to recognise this, rily – Community Champion for our Bladder cancer group, has put together a few facts about the cancer, and shared with us his story to date. The below makes for an eye-opening and honest read... Some facts about bladder cancer: 10,000 people are diagnosed with bladder cancer in the UK every year. There are more than 200 known cancers and bladder cancer is the 5 th most common in the Western World. For men, it’s the 4 th most common in the UK, and 7 th Bladder cancer isn’t a rare cancer, even though it’s rarely talked about. Once regarded as an older person’s disease, we’re seeing more and more younger people being diagnosed. Bladder cancer has the highest recurrence rate of any cancer. It is the most expensive…

Former Member
Head and neck cancer - when food is fuel

We know that receiving a cancer diagnosis can be scary, especially when you don’t know what to expect. Members in the Community have been there. They can help you to face those worries. Through shared experiences, they can help you face the unknown and make you feel much less alone. In this Community New Blog, we’re highlighting the head and neck cancer group and some of the issues members face through treatment and beyond. We’ll be focusing on eating problems, maintaining weight through treatment and staying as healthy as you can. Many members come to the Community looking for support with eating the right foods through treatment and dealing with side effects. "End of week 3 and taste buds have gone. Does anyone have any ideas of what foods they can still taste?" - Carran, head & neck…

Steph - Online Community Team
Coping with anniversaries - Bereavement support

This photo was taken at 7:05 am on a Sunday while I was volunteering at Kielder for the running weekend. The grey bar across the middle is actually a fog bank drifting over Kielder water and there is one lone duck swimming from the shore to the jetty. – David Anniversaries can mean something different to everyone, it can be the birthday of a loved one, a wedding anniversary, or the anniversary of a diagnosis or of their passing. These significant dates can be difficult to cope with for many reasons. You may want to spend the day thinking about the person who has passed to celebrate their life or mark their passing in some way. You may find you would prefer not to mark the day at all, and instead choose to treat the day as any other. There is no right or wrong way to feel or react when an…

Former Member
Overcoming smear fear with the Online Community

Many people worry about attending cervical screening appointments, due to anxiety, existing health worries and concerns about the procedure. It’s ok to feel a range of emotions including embarrassment, and by being a member of our Community cancer forums you’ll probably find that you’re not alone in feeling this way. It can be helpful to have the factual information about what to expect and our ‘ Cervical cancer prevention blog ’ has some helpful information about why it’s important to attend and keep up to date with Cervical screening appointments. This blog highlights the reassuring voice of our Community members and the support that’s offered to each other when talking about cervical screening. So if you’re feeling anxious or worried about an upcoming Cervical screening appointment,…

Megan- Online Community Team
What do you wish people would say? Katy’s story

Lots of members here on the Community talk about how it can be difficult to deal with unhelpful advice and reactions from other people when you have cancer. Katy is here to reassure you that you’re not alone if you’ve felt frustrated by what people say. This is our latest instalment in our series with with Macmillan’s Digital Storytelling Project, where people affected by cancer have created their own videos to talk about their experiences. For August’s Story of the Month, we’re featuring Katy. Katy was diagnosed with early stage cervical cancer in early 2021. Her video is all about how people can use a “cheat code” to be more helpful when talking to someone affected by cancer. “I don’t need you to cheer me up. I need you to tell me ‘yes, this does suck.’” Katy’s video is called “Cheat…

Eliza -Online Community Team

Awake and up all night?

We know that cancer can sometimes cause sleepless nights. Join our Cancer Chat forum for some company here in the 'Awake and up all night' thread.

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