Community News - Macmillan Online Community

You never see it coming - Jon's story

Jon had barely heard of penile cancer before his diagnosis at 40. To help raise awareness and share his experiences, he started sharing his story across social media to keep his family and friends up-to-date. This led to the knob blog , where Jon continues to talk about his experiences of diagnosis, treatment and side effects. In today’s Community News blog, Jon reflects on his experience with penile cancer, and how humour and his blog have helped along the way. *Early disclaimer: My blog posts might be sweary, and can be extremely graphic. I will often make light of what is an incredibly serious subject too. You have been warned!* Cancer is going to affect half of us We all know someone that’s had cancer, but we never really think it’s going to happen to us. At least, I certainly didn…

Ellen - Macmillan
A day in the life of...a Cancer Information & Support Advisor

We are pleased to be continuing our ‘A day in the life of…’ series today with Ruth, who works as an Information and support adviser on the Macmillan Support Line. Now that webchat is available directly on the Community site, we wanted to bring you a few of the faces behind the support and help you get to know more about how our teams can support you. For more information on how to use Webchat, please click here to read our recent Community News blog. So here’s what Ruth had to say when we asked her a few questions about her day, over to you Ruth! So firstly, what is a Cancer Information and Support Adviser? A Cancer Information and Support Adviser works directly with people affected by cancer on the Macmillan Support Line – our job is to offer a listening ear and emotional support, as…

Moderator - Macmillan Community
Planned maintenance - Tuesday 10th November, 7am-1pm

Hi everyone, Due to some planned maintenance on the main Macmillan website, www.macmillan.org.uk , the Online Community will enter a read-only mode between 7:00am and 1:00pm on Tuesday 10 th November. This means that you will not be able to log in, post or reply on the Online Community during this time. You will still be able to read posts and blogs on the site. If you feel you need some support while the Online Community is unavailable, please remember our Support Line is here for you. Our teams are available 8am-8pm, 7 days a week on freephone 0808 808 00 00 , or by email or webchat . Thank you for your continued support and patience as Macmillan continues to update and improve our online services. If you have any questions, please don’t hesitate to get in touch with us at community…

Eliza -Online Community Team
Ovarian Cancer- Anne's Story

March is Ovarian Cancer Awareness Month so to recognise this, Anne who is known as KralC on the Community, has kindly shared her blog post ‘ Who… ? ’ to tell her story and spread further awareness of Ovarian Cancer. We would like to take the opportunity to thank Anne for sharing her personal experience with the wider Online Community and send our very best wishes to her with her ongoing treatment and tests. Who… ? Who would choose to write this down? Who would choose to read a story like this? Not me. Not in all the months since my ... diagnosis. No, not me. Isn’t the word - CANCER - in itself enough to stop any vague distant notion before the idea could even begin to formulate itself? In the past I have rushed by the broadcasts, the features, the interviews, the podcasts, the TV…

Megan- Online Community Team
Community in Bloom

We’re starting to see the first signs of spring and welcoming the brighter evenings. You may remember the ‘Winter picture festival’ that was featured on the Community cancer forum at the end of last year but because we received such great feedback from members that took part, and others who loved seeing the pictures posted, we have decided to launch our very own ‘Community in bloom’. This will be featured in our Express yourself group so please do join and get involved. This is a space for members to share springtime images of wildlife, gardens, seasonal foods and cooking, alongside anything which fits within the springtime theme. It’s a chance to show off your creativity if you enjoy crafts or have taken a picture which could brighten up the site. You’re invited to post as many images…

Megan- Online Community Team
"I make a habit of crying. I consider myself to be quite good…”

One of our Wellbeing Champs here at Macmillan, Nat, recently shared with me a blog she wrote on how she discovered it was alright to be sensitive, to be emotional – to cry. The above follows Nat’s recent “rollercoaster of a mental health journey”, as she describes it – and whilst Nat’s story might not directly relate to cancer, I hope you perhaps read this and think that whatever you might be going through right now, it’s alright to feel emotional, to be sensitive, perhaps overwhelmed or even angry. The Community’s a place for you to share, talk about and help each other cope with these emotions – so go ahead and share! I was taken back to my 4th year at junior school, 5 days residential today for the first time in 30 years. As I stood in the school hall waiting for the coach to arrive…

Former Member
"Cancer must not define who we are..."

Whether it’s drawing a picture, painting, writing a song or perhaps a poem, being creative is for many people a great way to improve your mental wellbeing. Having spoken to a lot of our Community members about their experiences, I often hear that being creative has helped provide them with an escape or diversions to where cancer’s no longer a central focus. Our Express yourself group’s a space where members showcase their creations, so as a way of encouraging others to perhaps do the same, I thought I’d share a few highlights from the group for those who haven’t yet ventured into it. Enjoy… 'Bad and good!' by Blot3 Because of my hectic work and home life, I've found it difficult to vent. Whilst having rads I stayed away from home and decided to get down on paper what was really affecting…

Former Member
Lung Cancer Awareness Month - Cheryl's story

"Shine on, you crazy diamond!" November's Lung Cancer Awareness Month, and to recognise this Cheryl, one of our Online Community members, is sharing her experience with the cancer, which her dad, Derek, sadly passed away with earlier this year. On February 26 th , 2018 my lovely dad, Derek, was diagnosed with stage four lung cancer – non-small cell lung cancer with metastasis to his ribs, lungs, lymph nodes, spine, pelvis and hip … it had completely taken hold of him. My dad’s battle didn’t last long, he passed away in the local hospice on June 17 th – Father’s Day of all days, just three and a half months from his diagnosis to him losing his fight. His diagnosis came as a massive shock. I knew my dad wasn’t a well man as he had Chronic Obstructive Pulmonary Disease (COPD) and had smoked…

Former Member
"...putting on make-up and knowing I look good gives me a boost..." - Boots Macmillan Beauty Advisors

The visible side effects of cancer treatment can arguably have a huge impact on a life. It can change how your body looks, works or feels, and really impact on a patient's confidence. Patient.info editorial assistant, Milly Evans recently put together a post for the Patient.info website entitled How to manage the visible side effects of cancer treatment . In it she talks to one of our Boots Macmillan Beauty Advisors , Natasha, offers some top tips on how to feel more like yourself as you face cancer.. Here's Milly's piece... Cancer and cancer treatment not only have an impact on your physical well-being but also change your appearance and skin. Some are able to embrace these changes whilst others can struggle with confidence and feeling themselves. Lost identity... For Anita Brown…

Megan- Online Community Team
“This risotto is so easy and takes no time at all to make” - Dining with an Ostomate: Roasted Tomato and Basil Risotto

Today Debbie shares her recipe for a delicious roasted tomato and basil risotto, which sounds wonderfully warming on a cold October day! All of Debbie’s recipes are of course designed with Ostomates in mind, and in case you’d missed any of her recipes to date, you can find them all in our Ileostomy, colostomy and stoma support group here . Enjoy… Roasted Tomato and Basil Risotto - Serves 4, easily halved This risotto is so easy and takes no time at all to make. Use any fresh tomato soup you like. When I had my ileostomy, I didn’t eat tomato pips as I was concerned about blockage, so leave the cherry tomatoes out if you are concerned, or use larger on the vine tomatoes and remove the pips. Ingredients 2 tbsp olive oil 1 fat garlic glove, crushed 400g Risotto rice 2 x 600g…

Former Member
"Being diagnosed at a young age affected me more than I ever imagined." - Diagnosed at a young age: Gbear

After last month’s work-focused ‘Diagnosed at a young age’ piece with Ginajsy , this week sees Gbear opens up to the Community - sharing with us the impact her diagnosis had on both her family and social life, as well as its emotional impact. Being diagnosed at a young age affected me more than I ever imagined... This was me, pretty much a carefree scuba diver. I used to work retail which paid for my holidays to Egypt where I did most of my diving, aged 37. All this changed when I realised that something was very wrong and went to see my GP, who was great very understanding and got me sent off to the hospital to get scans done. I found that I was bleeding in-between periods at first just spotting but I kept feeling sharp pain that wasn’t normal. This was July 2016, I had been told that…

Former Member
"...and remember the mantra - chew well!" Dining with an Ostomate: Salads

It’s time for another instalment of ‘Dining with an Ostomate’. In today’s post, Debbie talks to us about summer salads, and shares her deliciously fresh and nutritious ‘Pesto lemon chicken salad’. All of Debbie’s recipes are of course designed with Ostomates in mind, and in case you’d missed any of her recipes to date, you can find them all in our Ileostomy, colostomy and stoma support group here . Enjoy… Summer salads As an Ostomate, I was nervous about trying salad vegetables at first. As my surgery was in January, I didn’t really give it much thought until March, when I was beginning to yearn for salads instead of soup for lunch. Having eaten spinach in soup, and then cooked as a side vegetable, the first salad leaves I tried were baby spinach. As this was a success, I then moved…

Former Member

Awake and up all night?

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