Telling children about cancer

5 minute read time.
Telling children about cancer

Alongside receiving a cancer diagnosis, one of the toughest moments a person can face is having to tell their children that they have cancer. Finding the words can be difficult, especially when trying to process the information yourself. It’s challenging but a conversation many will have to have, especially if mum or dad could potentially be struggling physically. In this blog, we take a look around the Community and see how other members have approached this sensitive subject.

How do you approach this subject? Is there only one way to approach this? You can ask a professional such as a doctor or nurse, but maybe they haven’t experienced what other members have. The things they wish they had done differently whilst telling their children as well as the things that worked for them. The most important thing here is to start a conversation. Let’s embark on a journey, across the Community and see how this difficult subject matter is dealt with by members.

Here we can see the internal conflict that a member may be going through when it comes to telling a child:

“I have been wondering what I/we might say to our 7 year old son about his dad having cancer and his treatment. I have read some of the information out there but in my  head and maybe it’s because of my own issues and negative images and associations about the word, that I'm not sure whether to use the actual word "cancer" or to talk about it in more general terms. So he still knows daddy has not been feeling well and he needs an operation and medicine to make him better. I’m really struggling with this because I struggled with anxiety as a child so I am extremely conscious of creating an environment for him where he feels safe and secure. I don't want him worrying about dad or me.”
Online Community Member, Bowel (colon or rectal) Cancer forum

It’s important to share both what worked and what didn’t work, as it can possibly help other members to tackle this in the best possible way:

“The big mistake I made, I forgot they could read and they read the signposts on the hospital wards and were shocked I did not mention cancer to them. I was surprised they knew what it meant as that did not come from me!”
Online Community Member, Bowel (colon or rectal) Cancer forum

As difficult as it may be to have this conversation with children in general, it can be all the more difficult when it comes to a terminal diagnosis. Here is an example of a member reaching out for support for two very young children:

“We recently received a shock terminal diagnosis for my mother-in-law. Things have taken place very quickly, so it has all been a real shock. She is very close to my two young children, aged 4 and 5 years. They normally spend at least 1 or 2 days per week with her. I am looking for some advice as to what is best to tell them and how to explain everything to them. I don’t want to scare or worry them but I also don’t want to lie to them.”
Online Community Member, Family and Friends forum

A member reached out and provided the following response:

“Hello sorry to hear about your mother in law. My dad has terminal cancer. and my 2 children who has autism is really close to my dad too. I think all u can do is tell the truth... all me and my mam said to my 2. Was grandads really poorly. so there will be a time when he has to go in the sky with the angels... hope this helps stay strong xxx”
Online Community Member, Family and Friends forum

Another example shows a member asking for support regarding older children:

“Hello, I have recently been diagnosed with high-grade stage 1 bladder cancer.  I've had two TURBT procedures and will begin BCG chemo in the next couple of weeks.  My wife and I have recently separated and we have two children, aged 14 and 11.  They know that Dad is sore after some operations however we have not mentioned the C word as yet.  Now that I have a firm diagnosis I feel that the kids should know what's going on.  Their mother has been reluctant to talk about it and keeps postponing.  I disagree with her position”
Online Community Member, Bladder Cancer forum

They received the following message of support:

“My kids were grown up when I was first diagnosed and we kept them in the loop all along. We did have grandchildren of varying ages. We found it better to let the grandchildren know in bite size chunks. A basic introduction of I was not well and gave them further information along the way. No need to mention the C word straight away. Treatment is a long process and you can give more information as time goes by. The youngsters turned out to be really supportive and understanding. I hope it goes well or you. Best wishes.”
Online Community Member, Bladder Cancer forum

To conclude, these are just some of the many examples that are available across the Community, when it comes to approaching this subject matter. It’s important to take what other members have said and try to tailor it to your children as no one will know them better than you. Share your triumphs and let other members know what worked well for you regarding telling children. There is no right or wrong way to do it, feel free to take a look around the Community and see their way, after absorbing the experiences, be comfortable, confident and do it in your own way.

Please feel free to take a look at some of the resources that are available when it comes to telling children/young people about cancer:

Anonymous
  • Hi ,

    Thank you for taking the time to write and share here. I'm sorry to read of your diagnosis, especially given that your wife was diagnosed the previous year. 

    It's understandable that it's been a tough time for your whole family. Hopefully the child counselling you've mentioned can be a source of comfort and support.

    The 'enter to send' button can catch new members out from time to time. We appreciate your feedback around this.

    Kindest Regards,

    Tom
    Macmillan Community 

  • Hi ,

    Thank you for sharing your thoughts on our blog. I'm sorry to hear that you've been struggling with what to say to your daughter. 

    We have a webpage on talking to children and cancer which might be useful to read through.

    Please remember as well that our Support Line is here for you, if you would like to talk to someone over the phone today. Our teams are here to chat with you around talking to your child about what’s happening and help you all access the right support. You can contact the Support Line over email, live webchat or by calling 0808 808 00 00 7 days a week between 8am-8pm.

    We're here to support you as best we can, so please just let us know if there's anything else we can do to help or if you have any questions. You can reach the Community team over email to community@macmillan.org.uk, or over private message to .

    Best wishes,

    Eliza

    Macmillan Community team

  • FormerMember
    FormerMember

    I think it’s very helpful to say “cancer” when explaining to children.  So much has evolved in the past 10-20 years that what used to be terrifying does not have to be now.  We told our 9-year-old straightforwardly that his Dad has cancer.  And we explained that cancer is very serious but many people completely recover.  We explained that Dad has to go through rough treatment to kill all the cancer cells, and sometimes those treatments can make him very poorly but we’re ok with that because it means the treatment is beating up the cancer very hard - even more than it is beating up Dad, and hopefully getting rid of it so Dad can be cured.  His friends all know his Dad has cancer. It’s useful so they know why they can’t come over when Dad is immunocompromised.  And the friends and parents have been brilliant about offering activities and distractions.   It’s useful to say the word as it means people realise it is serious. At the same time, we do emphasise that treatments are improving all the time and there is a great chance Dad will get better.  If we get to a terminal diagnosis, we also plan to tell our son the truth.  We will of course be careful about timing, but you can’t keep it from him forever and I think it erodes trust and creates more fear if you try to hide it.  If we don’t tell him the truth, I worry he will get more worries “will Mum die and she just isn’t telling me?” and he will never believe my reassurances.

  • Hello 

    Thank you for taking the time to share your experience with the Community. 

    Although some people may feel reluctant to share everything with younger children, it's sounds like you've had a positive experience of talking openly about a parent's cancer with your child. 

    I hope others find it helpful to read your comment. When you're struggling with how to tell the children, it can really help to be able to talk to people who've been through it themselves. If you'd like to share your thoughts with more members across the Community, you could start a thread in one of your groups around talking to children about cancer. 

    Do let us know if you have any questions, feedback or would like any help from the Community team.

    Kind Regards

    Steph - Online Community Officer

  • hi there, my mum has recently been told her vulva cancer has returned and metastasised to her lungs and also lymph nodes!! There is nothing they can do for it it is too advanced and she has other health issues!! In the meantime she is doing ok very tired but ok! He says she is in no pain! I feel I can’t do anything to help her I have 2 young boys 13 & 10 who absolutely love there granny to bits!! We have to tell them as I feel it’s unfair not too but don’t want to hurt them either!! Any advice would be much appropriated?