Telling children about cancer

5 minute read time.
Telling children about cancer

Alongside receiving a cancer diagnosis, one of the toughest moments a person can face is having to tell their children that they have cancer. Finding the words can be difficult, especially when trying to process the information yourself. It’s challenging but a conversation many will have to have, especially if mum or dad could potentially be struggling physically. In this blog, we take a look around the Community and see how other members have approached this sensitive subject.

How do you approach this subject? Is there only one way to approach this? You can ask a professional such as a doctor or nurse, but maybe they haven’t experienced what other members have. The things they wish they had done differently whilst telling their children as well as the things that worked for them. The most important thing here is to start a conversation. Let’s embark on a journey, across the Community and see how this difficult subject matter is dealt with by members.

Here we can see the internal conflict that a member may be going through when it comes to telling a child:

“I have been wondering what I/we might say to our 7 year old son about his dad having cancer and his treatment. I have read some of the information out there but in my  head and maybe it’s because of my own issues and negative images and associations about the word, that I'm not sure whether to use the actual word "cancer" or to talk about it in more general terms. So he still knows daddy has not been feeling well and he needs an operation and medicine to make him better. I’m really struggling with this because I struggled with anxiety as a child so I am extremely conscious of creating an environment for him where he feels safe and secure. I don't want him worrying about dad or me.”
Online Community Member, Bowel (colon or rectal) Cancer forum

It’s important to share both what worked and what didn’t work, as it can possibly help other members to tackle this in the best possible way:

“The big mistake I made, I forgot they could read and they read the signposts on the hospital wards and were shocked I did not mention cancer to them. I was surprised they knew what it meant as that did not come from me!”
Online Community Member, Bowel (colon or rectal) Cancer forum

As difficult as it may be to have this conversation with children in general, it can be all the more difficult when it comes to a terminal diagnosis. Here is an example of a member reaching out for support for two very young children:

“We recently received a shock terminal diagnosis for my mother-in-law. Things have taken place very quickly, so it has all been a real shock. She is very close to my two young children, aged 4 and 5 years. They normally spend at least 1 or 2 days per week with her. I am looking for some advice as to what is best to tell them and how to explain everything to them. I don’t want to scare or worry them but I also don’t want to lie to them.”
Online Community Member, Family and Friends forum

A member reached out and provided the following response:

“Hello sorry to hear about your mother in law. My dad has terminal cancer. and my 2 children who has autism is really close to my dad too. I think all u can do is tell the truth... all me and my mam said to my 2. Was grandads really poorly. so there will be a time when he has to go in the sky with the angels... hope this helps stay strong xxx”
Online Community Member, Family and Friends forum

Another example shows a member asking for support regarding older children:

“Hello, I have recently been diagnosed with high-grade stage 1 bladder cancer.  I've had two TURBT procedures and will begin BCG chemo in the next couple of weeks.  My wife and I have recently separated and we have two children, aged 14 and 11.  They know that Dad is sore after some operations however we have not mentioned the C word as yet.  Now that I have a firm diagnosis I feel that the kids should know what's going on.  Their mother has been reluctant to talk about it and keeps postponing.  I disagree with her position”
Online Community Member, Bladder Cancer forum

They received the following message of support:

“My kids were grown up when I was first diagnosed and we kept them in the loop all along. We did have grandchildren of varying ages. We found it better to let the grandchildren know in bite size chunks. A basic introduction of I was not well and gave them further information along the way. No need to mention the C word straight away. Treatment is a long process and you can give more information as time goes by. The youngsters turned out to be really supportive and understanding. I hope it goes well or you. Best wishes.”
Online Community Member, Bladder Cancer forum

To conclude, these are just some of the many examples that are available across the Community, when it comes to approaching this subject matter. It’s important to take what other members have said and try to tailor it to your children as no one will know them better than you. Share your triumphs and let other members know what worked well for you regarding telling children. There is no right or wrong way to do it, feel free to take a look around the Community and see their way, after absorbing the experiences, be comfortable, confident and do it in your own way.

Please feel free to take a look at some of the resources that are available when it comes to telling children/young people about cancer:

Anonymous
  • Hello ,

    Thank you for sharing your experience with us. I hope telling your family went OK, especially your 4 year old daughter being present. Although the circumstances that brought you here may have not been positive, I hope you can find the Community to be a comforting and supportive environment. 

    All the best to you and your family,

    Syed

    Macmillan Community Team

  • We told our son he had a BLOOP. A bunch of cells that were trying to help him but getting all mixed up and wrong. 

  • 2nd attempt at answering this, pressing the enter key for a new paragraph didn't seem to work and just sent a half finished mess. My daughter was twelve when I was diagnosed and my wife had only been diagnosed the year before with breast cancer it was a tough time for her. We were fully open all the way and promised not to hide anything from her but she also bottles things up. It was hard to get her to open up about things and we managed to work a way with my myeloma where we turned it into humor, at least that way things were at least being discussed. The backfire from this is that it upset my wife as she was obviously hurting knowing the spoiler alert to our story. We used child counselling and it was very good but noting your post I would get her name down sooner rather than later as some of the cild counsellors have long waiting lists. We are waiting for a 2nd session and already into the 2nd month of waiting, although it should not be much longer. Ahhh, just spotted the tick box for "Enter to reply" so I'll be turning that little sucker off. Great being a newbie here and making loads of mistakes.

  • i have told my older two daughters but have not mentioned a word to my 10-year-old.  All she knows so far is i had a spot removed from my arm.  Once I have my consultation with plastic surgeon next week I will have to tell her.  The thought about it now is making me want to cry.  I have no idea what to say.

  • Hi ,

    Thank you for sharing a comment and your experience here. 

    We hope that you have all the support you need around you at home and that you find more support here online.

    Kindest Regards,

    Tom
    Macmillan Community Team