New to the Online Community - some help in getting started

Hi Skipper1,

I'm sorry to hear about your husband's skin cancer diagnosis, but it's very positive to hear that following treatment, everything has come back clear. 

If you'd like to get some dependable medical advice on the best ways to stay protected in the sun, I can recommend getting in touch with our Cancer Information Nurse Specialists. You can get in touch either by phone on our Macmillan Support Line, or by posting on our Ask a Nurse forum, using your Online Community account.

If you'd like to get emotional support or practical tips from other members of the Online Community, I can recommend joining our Skin cancer forum. It's full of helpful members who have experienced a similar diagnosis to your husband, and they'll be only too happy to help.

If you need any further support using the Online Community, please do get in touch with us in the Online Community Team. You can send an email directly to community@macmillan.org.uk, and we'll be glad to help. 

Best wishes,

Matthew
Macmillan Online Community Team

Hi Tim212,

It’s Megan here from Macmillan’s Online Community team. I hope being a member of our Online Community can offer some comfort and support.

If you’re looking to connect with others who share similar experiences, you may want to introduce yourself in the forums. I can see you have already joined the Living with incurable cancer forum - patients onlyand the Secondary bone cancer forum. There is some information in our Help pages to help you join and post in the forums. I am sure once you introduce yourself in the forums, others will come by to offer some support.

With you having questions about treatment options, you may want to speak with the Nurses here at Macmillan. Whilst the Nurses on the Macmillan Support Line can’t access personal medical records, they’ll be able to answer clinical questions about a cancer. You can speak to the Nurses on the Macmillan Support Line every day from 8am to 8pm. To get in touch, you can call 0808 808 00 00, send an email or start a live webchat during the opening hours.

Even if you need a listening ear and some emotional support, the Cancer Support Advisors are also there to support you. There’s also the option to post your questions in our Ask an Expert section of the Community from Monday to Friday. This is where you can post questions to our Nurses, and Support Advisers, and they’ll aim to respond as soon as they can. Usually within 2-3 working days.

I hope I’ve been able to reassure you that there’s lots of support available and we are here to help. If you need any help using the Community or finding additional support, please don’t hesitate to email community@macmillan.org.uk or send a private message to the Moderator account.

Best wishes, 

Megan
Macmillan's Online Community team

Hi my husband has started adjuvant chemotherapy tablet form Capecitabine one of the side affects is neuropathy he has blisters all over his feet and is struggling to walk has anybody else suffered this way and what did you do to alleviate it 

Hi Newfoundland,

Thanks so much for your comment. I'm really sorry to hear about the side-effects your husband has been experiencing. I can only imagine how uncomfortable that must be.

Just to let you know, we received your email and so I have replied to it with further information that you might find helpful. In case you haven't received it, I can recommend asking for advice by speaking with our clinically experienced Cancer Information Nurse Specialists. You can do this by posting your question over on our Ask a Nurse forum, or you can reach them by calling our main Macmillan Support Line on freephone 0808 808 00 00.

If you need any further help using the Online Community, please do get in touch with us in the Online Community Team by sending another email to community@macmillan.org.uk and we'll get back to you as soon as we can.

Sincere best wishes,

Matthew
Macmillan Online Community Team

Hi I am new to the community so please forgive me if I get things wrong, I was diagnosed with NHL in 2003, I had a enlarged lymph node in my left armpit last October. I went to see my Oncologist and was sent for a petscan. This showed up several small anomalies which didn't seem to concern my team and I was put on active surveillance, which means absolutely nothing to me. I have lost 14 kilo in the last year and have night sweats and bad sleep patterns. My head is totally smashed because I always thought the saying was "if caught early then NHL can be treated". My Oncologist says everything is fine so why do I feel so uneasy.