New to the Online Community - some help in getting started

1 minute read time.
New to the Online Community - some help in getting started

Are you new to the Online Community and looking for help with getting started? We're here to help.

How to get started on the Online Community

We have produced a short video, showing you step by step how to get started.

This video shows you step by step how to join a group/forum and post a message.


Written instructions for getting started

If you prefer written instructions, you can find them here: 

  • If you haven’t already joined the forum click in the joining banner at the bottom, then click ok.

  • To add a new message in the forum, click on the ‘create new post’ button.

  • On a mobile, this looks like a plus sign at the top right of your screen.

  • In some groups, you can choose from different forums. If you’re new, you might want to choose ‘new here say hello’

Subject line - Write your post title in the subject line, this should just be few words to describe what you want to talk about or discuss

Description - Use this space to write your post. This will start a new discussion in the forum.

You could:

  • Introduce yourself
  • Share a few details about your cancer experience

You might want to:

  • Ask a question to other members
  • Share your cancer experience
  • Talk about how you are feeling, vent your emotions or share your fears
  • Or ask for other member's experiences

It's ok if you're not sure what to talk about yet, we'd encourage you to introduce yourself so that other members know that you're here.

Once you have finished writing, click ‘post’ in the green button at the bottom to post it in the forum.

If you have allowed email notifications, we will send you an email to let you know when someone replies to your post.

Let us know what you need help with

We are producing further videos to help users of the Online Community access the support you need. Please do let us know if there is a function you would particularly benefit from some extra help with.  

Madiso
  • hi i am Anna i am new here i have never posted i was diagnosed with Breast Cancer in January i have had my mastectomy and reconstruction and go for my first session of chemo today and just wanted to introduce myself i will tell you more about my story as this has been quite a year at a later stage.  Could i ask a question with regards to the chemo can you eat anything whilst you are having your chemo or is that a nono i was going to take some snacks nice speaking with you all 

    1. Hi. My husband was diagnosed with Merkel Cell Carcinoma in April. The lump has been removed, the PET scan was clear and secondary biopsies of the lump and the sentinel node he had removed, are also clear. We are currently waiting for radiotherapy. 
      We have bought lots of UPF50 clothing, hats and gallons of sunscreen. 
      My question is - should he be able, with all the precautions listed, be able to go for walks in the sun, or should he avoid it totally? Obviously if the UV is high, we would stay in. 
      Just trying to get a new lifestyle sorted without taking risks in the sun, but not becoming scared! 
      thanks in advance for any experiences with this. 
    1. Bring snacks but dont be surprised if your usual things dont taste the same. Watermelon was great when everything else tasted wrong. Lemon electrolytes in your water help and small and often is the best way when you've no appetite.  Im just finished  8 rounds and my appetite is coming back now. Best of luck 
  • Hi all I’m a now 73 year old man who until 6 Monty ago was what I thought fit and active walking 4 miles a day volunteering 2 days a week then wham fell on the beach one of those trips where you pick yourself up look around and feel good that nobody else was around well it turned into back ache eventually diagnosed as sciatica pain continued psyio made it worse referred to osteopath who put me on 14 day pathway to mri found I had spinal nets by reading notes on NHS app before consultant could tell me 

    apparently they can’t after numerous scans say where primary is but believe from 2019 removed encapsulated kidney end result I now have spinal nets to pelvis legions on back and shoulder and suspected spread of nodules to one lung high dose meds are keeping me relatively pain free but I’m not me help me I need answers and questions to what’s next I’ve had radio therapy to back pelvis shoulder pain still there and fatique like I’ve never known 

  • Hi ,

    Welcome to the Online Community, and thanks for sharing some of your story with us. I'm sorry to hear about your diagnosis, but I am glad to hear that you've completed your surgical stage, and that you're now getting on with your chemotherapy treatment.

    If you'd like to update the Community on how your first session went, you might like to start a new discussion thread over on the Breast cancer forum. I can see you've already joined that forum, so if you need any tips on how to start a new discussion there, feel to check out our handy instructional video.

    Best wishes,

    Matthew
    Macmillan Online Community Team