CLL NEWBIE

Options

More Content

  • Secondary cancer and new primary cancers

    Mc7

    I am aware that, as a CLL patient, I have to be aware of increased risk of skin cancer, and I believe breast cancer, but in a recent, non related, appointment with a medical associate, I was given information which I found distressing:-

    This young woman, who apparently did 2 years post graduate training to become a medical associate (ie not a doctor) told me that my CLL is like a tumour in any other cancer, that bits…

  • Normal?

    FormerMember
    FormerMember
    Looking at how I think about having CLL these days I seem to be thinking differently? I appear no longer concerned about the procedure of giving a little blood for routine testing, I even never seem to give a second thought about what the disease may be doing. Whether my counts may have altered dramatically from the last time. I know it's  slowly marching (creeping up), but don't seem to be phased. The day to day symptoms…

  • CLL Newbies update

    FormerMember
    FormerMember
    As an active CLLSA member I have put together a few of my blogs showing my thoughts as I have journeyed through the transition of accepting my diagnosis and moving on. I hope this may help other CLL patients. We now have an online group forum; CLL, SLL, HCL 
    Jan 27th 2011    Making the adjustment 
    Feb 2011    waking up
    July 27th 2011      Watch and Wait, is it the right name?
     
    July 28th 2011

    Realising…

  • Watch and Wait, is it the right name?

    FormerMember
    FormerMember
    We watch the watch tick and seem to wait, perhaps not a good start!!
    Watch and Wait was a new experience for me-  it fuelled my anxiety. I could easily understand that a well balanced diet and simple exercise would help me physically. But was intrigued by the state of mind of people in Watch and Wait, and I went to investigate both that state of mind, and stress relief.
     
    Watch and Wait gives us time for the reality…

  • waking up

    FormerMember
    FormerMember
    Feb 2011 
     When I found out that UHW was  a world renowned CLL research centre, It was a “would you believe it moment”, that my tiny corner of our small principality, could have dealt me such a card in the “post code lottery” game of our health system. One thing that I realised quite early on in my information search; was that I need to develop a good relationship with an informed cutting edge specialist and I’ve been dealt…
Help us do whatever it takes, because we’ve never been needed more.

© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007