ChrisC's blog

Hi All

Going for my 1st mri scan on thursday and I am very nervous about it.  The consultant damaged my jugular bulb in the op and had to finish early so does not think he has all the tumour. It will need another op, hope not.

Chris C

Hi Everyone Just to let you know I had my op 2 weeks ago for the removal of the tumour attached to my corited and jugular artery. I have had a hariy time of it. The op should have been for 4 hours and ended up 8 1/2. The docs harvested some fat from my stomach to pack into the hole in my skull, whilst in recovery I developed a bool clot. A decision had to make where it was, my head or my stomach. My bllod pressure…

Bit jittery this week as I go in for my op next Tuesday to try to remove the tumour from the artery. I have found out that this cancer responds to something called a proton blaster, or proton therapy. Guess where, the good old USA. Why have we not got at least 1 machine here? It is very successful. Another method, which I have not been told about by my consultant is Gamma Knife, again successful. There is one in…

Hi Fairly new to this but have my date for the op to try to remove some of the tumour from the artery. Found out today Chrondosarcoma does not respond to chemo or radiotherepy. Feel so alone, know one seems to have heard of it in this place. My gp is doom & gloom. Not a good way to go into an op. Can't stop crying, worrying about the family etc. Cannot find any info as the consultant has had to research world wide. So…

Hi Me again, I was sending a reply to somebody but got interupted, had to close down and now cannot find my original message, any clues on how to retrieve them? ChrisC