Hi
Fairly new to this but have my date for the op to try to remove some of the tumour from the artery. Found out today Chrondosarcoma does not respond to chemo or radiotherepy. Feel so alone, know one seems to have heard of it in this place. My gp is doom & gloom. Not a good way to go into an op. Can't stop crying, worrying about the family etc. Cannot find any info as the consultant has had to research world wide. So difficult.
ChrisC
FormerMember
Hi
I read your blog and so sorry that you are having this added difficulty, it is a hard time coming to terms with the diagnosis and although I can't do anything, please know that you are not alone. Without wanting to sound like a bible basher which I am not, but I did find strength through prayer, millions upon millions of people believe that it works, so I thought who am I to argue. Maybe it will help you to?
Take on step at a time, they will look after you and one thing is for sure there are many people on this site that have said the same thing as you and they HAVE come out the other side, keep positive I am a firm believer in that. I know how scared you are I have been there! Good luck with the op and when is it by the way, the surgeons are very skilled in their field you are in good hands. Ruth xx
Thanks Ruth, the op is 9th June I now the surgeons are skilled but no one has talked about oncology. I live near the Christie hospital, how do I know if it has spread. They all seem concerned with the artery, which I understand but I have other pains in ribs etc. Am I running before I can walk?
